2. Tools to Access the Latest Cancer Statistics Paul Miller Washington Reporting Fellowships program presentation April 15, 2013

3. SEER area, funded by NCI SEER/NPCR* area, funded by NCI and CDC NPCR area, funded by CDC *NPCR – National Program of Cancer Registries Surveillance, Epidemiology, and End Results (SEER) Program: Cancer Registries and Collaborators

4. The SEER Program  SEER collects data on cancer incidence and survival, calculates prevalence, and compiles these statistics, plus also reports mortality data.  NCI’s Surveillance Research Program (SRP) reports data collected by SEER in the Cancer Statistics Review and other publications made available to reporters and the public. It is usually updated every April 15. This year’s update will cover the period from 1975-2010  Data is also available through SEER tools and resources, such as SEER*Stat software and linked data files. Requests are hand- processed.

5. Annual Report to the Nation on the Status of Cancer NCI partners on the “The Annual Report to the Nation on the Status of Cancer” with CDC, the American Cancer Society, and the North American Association of Central Cancer Registries. The most recent Annual Report to the Nation appeared in JNCI on Jan. 7, 2013, with a special section on Human Papilloma Virus (HPV) surveillance. The next Annual Report, covering the time period 1975- 2010, should appear early in 2014.

6. SEER Cancer Stat Fact Sheet Cancer Stat Fact Sheets provide statistical summaries for 30 cancer sites, including for “All Cancer Sites.” seer.cancer.gov/statfacts/ Cancer Stat Fact Sheets provide statistical summaries for 30 cancer sites, including for “All Cancer Sites.” seer.cancer.gov/statfacts/

7. Cancer Stat Fact Sheet: All Cancer Sites  For each fact sheet, statistics may include Incidence & Mortality, Survival, Lifetime Risk, and Prevalence.  These are updated annually to coincide with SEER data release.  For each fact sheet, statistics may include Incidence & Mortality, Survival, Lifetime Risk, and Prevalence.  These are updated annually to coincide with SEER data release.

8. Cancer Stat Fact Sheet: All Cancer Sites SEER Incidence SEER Incidence  Incidence is the number of new cases of disease diagnosed each year.  The “age-adjusted” incidence rate for All Cancer Sites was 465.2 per 100,000 people per year.  This is based on cases diagnosed in 2005-2009 from 18 SEER geographic areas. SEER Incidence  Incidence is the number of new cases of disease diagnosed each year.  The “age-adjusted” incidence rate for All Cancer Sites was 465.2 per 100,000 people per year.  This is based on cases diagnosed in 2005-2009 from 18 SEER geographic areas.

9. Cancer Stat Fact Sheet: All Cancer Sites US Mortality US Mortality  US mortality is the number of deaths in a certain group of people in a certain period of time.  The “age-adjusted” death rate for All Cancer Sites was 178.7 per 100,000 people per year.  This rate is based on patients who died in 2005- 2009 in the United States. US Mortality  US mortality is the number of deaths in a certain group of people in a certain period of time.  The “age-adjusted” death rate for All Cancer Sites was 178.7 per 100,000 people per year.  This rate is based on patients who died in 2005- 2009 in the United States.

10. Cancer Stat Fact Sheet: All Cancer Sites Trends in Rates Trends in SEER Incidence Rates  Trends can be evaluated by the annual percent change (APC).  From 1998 to 2009 the APC for All Cancer Sites was -0.5. This was a statistically significant decrease.  Joinpoint analyses are used to evaluate when changes in the trend occurred with the APC. Trends in SEER Incidence Rates  Trends can be evaluated by the annual percent change (APC).  From 1998 to 2009 the APC for All Cancer Sites was -0.5. This was a statistically significant decrease.  Joinpoint analyses are used to evaluate when changes in the trend occurred with the APC.

11. Joinpoint Trends in SEER Incidence Rates, 1975-2009 All Cancer Sites Joinpoint Trend in SEER Cancer Incidence  An asterisk after the APC indicates that the trend was statistically significant.  Negative estimate indicates that cancer incidence was decreasing in that time period. Joinpoint Trend in SEER Cancer Incidence  An asterisk after the APC indicates that the trend was statistically significant.  Negative estimate indicates that cancer incidence was decreasing in that time period.

12. Cancer Stat Fact Sheet: All Cancer Sites Survival Survival  These survival statistics are based on 5-year Relative Survival. Relative survival estimates the percentage of patients expected to survive their cancer at a least 5 years after diagnosis.  The overall 5-year relative survival rate for men and women was 65.4%.  This is based on cases diagnosed between 2002-2008 from 18 SEER geographic areas.Survival  These survival statistics are based on 5-year Relative Survival. Relative survival estimates the percentage of patients expected to survive their cancer at a least 5 years after diagnosis.  The overall 5-year relative survival rate for men and women was 65.4%.  This is based on cases diagnosed between 2002-2008 from 18 SEER geographic areas.

13. Cancer Stat Fact Sheet: All Cancer Sites Lifetime Risk Lifetime Risk  Lifetime Risk is an estimate of the percentage of patients who will be diagnosed with cancer in their lifetime.  Based on rates from 2007-2009, 41.2% of men and women born today will be diagnosed with cancer in their lifetime.  SEER also calculates the probability of developing cancer between two age groups. This is available in Fast Stats. Lifetime Risk  Lifetime Risk is an estimate of the percentage of patients who will be diagnosed with cancer in their lifetime.  Based on rates from 2007-2009, 41.2% of men and women born today will be diagnosed with cancer in their lifetime.  SEER also calculates the probability of developing cancer between two age groups. This is available in Fast Stats.

14. Cancer Stat Fact Sheet: All Cancer Sites Prevalence Prevalence  Prevalence is the number of people alive that have had a previous diagnosis of cancer.  On January 1, 2009, there were 12,553,337 men and women alive who had a history of cancer of all sites.Prevalence  Prevalence is the number of people alive that have had a previous diagnosis of cancer.  On January 1, 2009, there were 12,553,337 men and women alive who had a history of cancer of all sites.

15. Trends in SEER Incidence by Primary Cancer Site, 2000-2009 Average Annual Percent Change 2000-2009 Myeloma Brain & Other Nervous System Lung & Bronchus (Female) Urinary Bladder All Sites Except Lung & Bronchus All Cancer Sites Breast (Female) Esophagus Leukemia Stomach Ovary Cervix Uteri Prostate Lung & Bronchus (Male) Larynx Colon & Rectum Thyroid Liver & Intrahepatic Bile Duct Kidney & Renal Pelvis Melanoma of the Skin Pancreas Corpus & Uterus, NOS Hodgkin Lymphoma Testis Non-Hodgkin Lymphoma Oral Cavity & Pharynx * The APC is significantly different from zero (p<.05)

16. Trends in US Death Rates by Primary Cancer Site, 2000-2009 Average Annual Percent Change 2000-2009 Esophagus Brain & Other Nervous System Testis Lung & Bronchus (Female) Kidney & Renal Pelvis Leukemia Oral Cavity & Pharynx All Cancer Sites All Sites Except Lung & Bronchus Ovary Cervix Uteri Myeloma Breast (Female) Hodgkin Lymphoma Lung & Bronchus (Male) Larynx Colon & Rectum Non-Hodgkin Lymphoma Stomach Prostate Liver & Intrahepatic Bile Duct Thyroid Melanoma of the Skin Pancreas Corpus & Uterus, NOS Urinary Bladder * The APC is significantly different from zero (p<.05)

17. SEER Web Sites SEER Home Page (http://seer.cancer.gov/)http://seer.cancer.gov/ Cancer Statistics (http://seer.cancer.gov/statistics/)http://seer.cancer.gov/statistics/ – Fact Sheets – Cancer Statistics Review (CSR) – State Cancer Profiles Access to SEER Datasets and NCI Software to analyze data (http://seer.cancer.gov/resources/)http://seer.cancer.gov/resources/

18. What is State Cancer Profiles?  Statistics for prioritizing cancer control activities  National, state, and local level data  Collaboration  CDC’s National Program of Cancer Registries (NPCR)  NCI’s Surveillance, Epidemiology and End Results Registries (SEER)

19. Available Data  Cancer incidence, mortality data and prevalence data  Latest data years currently available  2009 NCI SEER incidence (2010 coming soon)  2009 CDC NPCR incidence  2009 NCHS mortality  About 20 different cancer sites  Screening and risk factor data

20. State Cancer Profiles Usage Resource for:  Priority setting; planning  Implementing and assessing cancer control projects  Exposing health disparities  Comparing state cancer data with other states  Reviewing trends in cancer  Presentations, reports, proposals, training

21. Quick Profiles Support Data

25. Death Rate/Trend Comparison by Cancer

28. SCP: Screening and Risk Factors

29. Mammography by State

30. Mammography by Small Area Estimates

31. Demographic Data  Population: Age Groups  Population: Race Groups  Education  Income  Housing  Urban/Rural  Workforce: Unemployed  Poverty

32. Persons below Poverty

33. Coming Soon to State Cancer Profiles  Home Page  HINTS (Health Interview National Trends Survey)  Demographic data  Small Area Health Insurance Estimates

35. Questions Please visit: www.cancer.gov