1. Assistant Professor of Medicine
The Cleveland Clinic Statistical Education Dataset Repository: Examples and more Examples
June 18, 2013
Amy Nowacki, PhD
Assistant Professor of Medicine

2. Study Design
Data Collection
Data Preparation
Data Analysis
Reporting of Results
Searching for Data
Data Preparation
Data Use

3. The Survey Sent to 175 past/current research preceptors at CCLCM
74 (42%) responded
Q1: “Would you ever consider granting permission for your de-identified data to be posted to a Cleveland Clinic medical study statistical repository (open website)?
76% (56/74) responded favorably!

4. The Website http://www.lerner.ccf.org/qhs/datasets/
Attributes that enhance the instructional suitability of a dataset:
raw form
authentic
include background information
intrinsically interesting or relevant
current or controversial
lend themselves to various statistical analyses
Cleveland Clinic Statistical Education Dataset Repository
raw data
real medical studies
study vignette
clear documentation
several variables

6. Example Study Vignette
Rationale for study
Research question

7. Description of sample
Primary outcome
Secondary outcomes

8. Example Data Dictionary

12. Effective Data Sharing
communicating that data are available
providing sufficient descriptive information about the data
rendering the data in a usable format
making data accessible
Future Plans
expanding the repository to allow outside dataset submissions
generate a bank of educational materials associated with the datasets to assist or inspire statistical educators
This repository will continuously be appended to and enhanced…check back regularly!