3. what’s in a name?

4. cavernoma cavernous angioma cavernous haemangioma cerebral cavernous malformation CCM

5. a cluster of abnormal blood vessels in the brain or spinal cord

6. discovery of cavernoma Magnetic Resonance Imaging Scan

7. frequency 1 in 600 affected asymptomatically 1 in 400,000 affected symptomatically

8. asymptomatic discovery as a result of MRI testing for other conditions symptomatic discovery as a result of haemorrhages, seizures, headaches, imbalance, slurred speech and double vision

9. Genetic Alliance UK Facilitating Networks Project and CA UK

10. Guidelines for the management of cerebral cavernous malformations

11. presented by Dr Rustam Al- Shahi Salman

12. The 7th Annual Pathobiology of CCM Scientific Workshop Angioma Alliance Genetic Alliance UK Cavernoma Alliance UK

13. Dolce Chantilly Hotel Friday November 18 th 2011

14. should CCM be managed that has caused only one seizure?

15. Should CCM be managed in mothers before, during and after birth?

16. this research would be impossible without the help of Genetic Alliance UK, Facilitating Networks

17. Krystle Kontoh

18. Information Booklets & Leaflet Symptomatic CavernomaIncidental Cavernoma Genetics of CavernomaInformation Leaflet

19. Thank You!