1. Butterflies Derbyshire ADHD Support Network The Road Ahead

2. The Beginning Conceived as a result of the Derby University ADHD DAFT conference in 2008. After hearing the opinions of parents and professionals there was a consensus that there wasn’t enough information freely available. It was recognised that support groups should be able to share their information rather than standing alone.

3. The Beginning A group of parents and professionals discussed how they could make more information available and the easiest way to do it Options included a newsletter, leaflets and a web site It was decided that a web site would be the best option

4. Why a web site? Perfect place to store shared resources where the most people could access them Professionals, families and carers would have access to the same information People could report their experiences for people to learn from

5. Going Live Web site went live in October 2009 Contains locations and details of support groups as well as shared documents and articles. Forum and live chat facilities added during the next few months.

6. Evolution Committee hosted scheduled live chat sessions on Thursday evenings One-to-one help for parents and family members Media coverage Suggestions from professionals

7. What we’ve discovered Professional involvement is valuable but rare Everyone who lives with ADHD needs help and support Carers, especially secondary carers, are often neglected There is a lot of help out there, but families often have to go and find it themselves

8. What we’ve discovered Schools, GPs and social services are often unable to offer aid or advice Recognition and acceptance of ADHD is still rare in schools Derby City and Derbyshire are very different in their approach to ADHD Not enough integration of services (although this is improving)

9. Current focus Parent support involvement with RAPID training Attending multi-disciplinary meetings Sharing discoveries and information from these meetings with everyone through the website

10. Current focus Providing assistance for parents and carers to start up their own support groups Publicising and signposting support groups Providing one-to-one support to parents or carers who contact us through the website

11. The Road Ahead More help for families More information on adult ADHD Information about related and co- morbid conditions, such as ADD, Aspergers and ASD More involvement from professionals

12. Thank you Any Questions? Anyone who can help?