1. Last Years of Life: Service User Involvement Sarah Burnard, Community Engagement Manager, St Joseph’s Hospice

2. Total number of people engaged with – 181: Carers and Patients

3. Key Themes Information: “We need the right information at the right time” Integrated working: “Services provided feel disjointed” Immediacy of care: “Services need to be fast and immediately responsive” Support for carers: “Carer’s quality of life is poor” Non-traditional services: “Peer to peer support is important” Specialist nurses: “The nurses had knowledge and compassion” Paid Carers: “There is a lack of training and empathy” GP Services: “The relationship with your GP is very important” District Nurses: “Seeing different nurses can lead to inconsistent care” Hospital Care: “Compassion and empathy is important”

4. What has happened so far: Feedback has influenced the Last Years of Life Care Strategy and the Integrated Care Strategy Out of Hours / 111 Service Dying Matters events annually Member of group sits on CCG Last Years of Life Steering group A District Nursing Service User Review A directory for Last Years of Life Care services Islington Bereavement Service Islington Bereavement Service

5. Dying Matters: You Only Die Once This year Dying Matters Awareness week will take place 12 th -18 th May. This year’s theme is “You only die once”. There will be an event run by Islington CCG. Date: Weds 18 th May 2015 Time: 10am-4pm Venue: Islington Assembly Hall, Upper Street, London, N1 2UD The event will include workshops covering topics such as will writing, advice about affordable funerals and and support for people with long term conditons. There will also be information stalls from local service providers. FREE complementary therapy taster sessions FREE lunch & refreshments Everyone welcome to attend this FREE event! For further information please contact Rachael Yearwood on 0208 525 3140 or email r.yearwood@STJH.org.ukr.yearwood@STJH.org.uk

6. Any Questions???