1. Data Advisory Committee Update Charlie Alexander RN, MSN, MBA

2. Seek broad input in developing a long term, innovative vision for the OPTN/SRTR data set Systematic and smoothly functioning process for the identification of OPTN data to be collected Methods of collection Types of products to be supported by the system Analyze and consider advances in both organ transplantation and technology in order to inform this vision DAC Charge and Functions

3. Name Committee Position Institution Name Charles Alexander RN, MSN, MBAChairThe Living Legacy Foundation of MD S. Joseph Kim M.D., FRCPCVice-ChairToronto General Hospital Yael CopplesonAt LargeNew York-Presbyterian Hospital Sandy Feng MD, PhDAt LargeUCSF Medical Center Alexandra Glazier JD, MPHAt LargeNew England Organ Bank Richard Hasz Jr, MFSAt LargeGift of Life Donor Program Ian Jamieson MBA, MHAAt LargeDuke University Medical Center Maryl Johnson MDAt LargeUniversity of Wisconsin Alan Leichtman MDAt LargeUniversity of Michigan Medical Center Robert Merion MDAt LargeUniversity of Michigan Medical Center Mike PetersonAt LargeNeuStar, Inc. Jesse Schold PhD, M.Stat, M.EdAt LargeCleveland Clinic Foundation Stuart Sweet M.D., Ph.D.At LargeSt. Louis Children's Hospital James Wynn M.D.At LargeUniversity of Mississippi Medical Center Committee Composition

4. Vision Construct a vision for data collection, reporting, and analysis for OPTN and SRTR Drive transplant system improvement Identify areas of improvement in existing data systems

5. Collaborate with organ-specific committee experts Review existing OPO data and metric projects Assess work that has already been completed Remain mindful of data burden and community support Keep in mind impact on research Considerations

6. Challenges Data burden on members Consensus among interested parties OPTN IT development Work within existing framework Final Rule OPTN Principles of Data Collection

7. Potential Futures Develop vision for data systems Create metrics that drive increases in organ donation and utilization Redefine: What is a successful transplant? Inform allocation policy Remain flexible to accommodate transplant community’s medical and technological advances

8. Thank you! Charlie Alexander RN, MSN, MBA, Committee Chair calexander@thellf.org Kristina Tyler JD, Committee Liaison Kristina.Tyler@unos.org Questions?