1. 1 Advocacy Session Sarcoma Research Funding by the Nonprofit Sector Jody Cummings, MPH Executive Director Jody Cummings, MPH Executive Director

2. 2 Sarcoma Foundation of America - Mission Our mission is to act as an advocate for sarcoma medical research AND provide funding to support research focused on discovering and developing new weapons with which to treat and eradicate sarcoma Our mission is to act as an advocate for sarcoma medical research AND provide funding to support research focused on discovering and developing new weapons with which to treat and eradicate sarcoma

3. 3 To achieve our mission, the SFA, will focus on the following three goals: Funding of research grants through our internal mechanism as well as by giving financial support to outside foundations, such as ASCO and AACR. Funding of research grants through our internal mechanism as well as by giving financial support to outside foundations, such as ASCO and AACR. Grassroots Awareness and Education Campaigns Grassroots Awareness and Education Campaigns Research Advocacy Research Advocacy Funding of research grants through our internal mechanism as well as by giving financial support to outside foundations, such as ASCO and AACR. Funding of research grants through our internal mechanism as well as by giving financial support to outside foundations, such as ASCO and AACR. Grassroots Awareness and Education Campaigns Grassroots Awareness and Education Campaigns Research Advocacy Research Advocacy

4. 4 The SFA will achieve its goals by: Continuing to fund state of the art sarcoma research Continuing to fund state of the art sarcoma research Creating a critical mass of sarcoma patients and caregivers Creating a critical mass of sarcoma patients and caregivers By convincing state and federal legislators to pay attention to sarcoma By convincing state and federal legislators to pay attention to sarcoma Continuing to fund state of the art sarcoma research Continuing to fund state of the art sarcoma research Creating a critical mass of sarcoma patients and caregivers Creating a critical mass of sarcoma patients and caregivers By convincing state and federal legislators to pay attention to sarcoma By convincing state and federal legislators to pay attention to sarcoma

5. 5 Call for Grant Proposals A call for grant proposals is currently active A call for grant proposals is currently active Deadline for applications is January 31, 2005 Deadline for applications is January 31, 2005 For this funding cycle, grant amounts will be a maximum of $25,000 For this funding cycle, grant amounts will be a maximum of $25,000 For more information visit our site at www.curesarcoma.org For more information visit our site at www.curesarcoma.org www.curesarcoma.org The SFA is also funding a Young Investigator Award through ASCO. The SFA is also funding a Young Investigator Award through ASCO. A call for grant proposals is currently active A call for grant proposals is currently active Deadline for applications is January 31, 2005 Deadline for applications is January 31, 2005 For this funding cycle, grant amounts will be a maximum of $25,000 For this funding cycle, grant amounts will be a maximum of $25,000 For more information visit our site at www.curesarcoma.org For more information visit our site at www.curesarcoma.org www.curesarcoma.org The SFA is also funding a Young Investigator Award through ASCO. The SFA is also funding a Young Investigator Award through ASCO.

6. 6 Medical Advisory Board Murray Brennan, M.D. Murray Brennan, M.D. Larry Baker, D.O. Larry Baker, D.O. Charles Forscher, M.D. Charles Forscher, M.D. Lee Helman, M.D. Lee Helman, M.D. Jonathan Lewis, M.D. Jonathan Lewis, M.D. Alberto Pappo, M.D. Alberto Pappo, M.D. Vernon Sondak, M.D. Vernon Sondak, M.D. Murray Brennan, M.D. Murray Brennan, M.D. Larry Baker, D.O. Larry Baker, D.O. Charles Forscher, M.D. Charles Forscher, M.D. Lee Helman, M.D. Lee Helman, M.D. Jonathan Lewis, M.D. Jonathan Lewis, M.D. Alberto Pappo, M.D. Alberto Pappo, M.D. Vernon Sondak, M.D. Vernon Sondak, M.D. George Demetri, M.D. George Demetri, M.D. Bob Benjamin, M.D. Bob Benjamin, M.D. Richard Gorlick, M.D. Richard Gorlick, M.D. Marc Ladanyi, M.D. Marc Ladanyi, M.D. Robert Maki, M.D., Ph.D. Robert Maki, M.D., Ph.D. Peter Pisters, M.D. Peter Pisters, M.D.

7. 7 2004 Research Grants Sarcoma Cell Line Resource with Molecular and Kinase Annotation – Jonathan Fletcher, MD Sarcoma Cell Line Resource with Molecular and Kinase Annotation – Jonathan Fletcher, MD Molecular Classification of Sarcoma Cell Lines – Matt van de Rijn, MD, PhD Molecular Classification of Sarcoma Cell Lines – Matt van de Rijn, MD, PhD Molecular Dissection of a Subset of Gene Fusion-Associated Sarcomas that Lack that Lack the Gene Fusion – Frederic Barr, MD Molecular Dissection of a Subset of Gene Fusion-Associated Sarcomas that Lack that Lack the Gene Fusion – Frederic Barr, MD The Role of RECQ Helicases in the Pathogenesis of Osteosarcoma – Lisa Wang, MD The Role of RECQ Helicases in the Pathogenesis of Osteosarcoma – Lisa Wang, MD Sarcoma Cell Line Resource with Molecular and Kinase Annotation – Jonathan Fletcher, MD Sarcoma Cell Line Resource with Molecular and Kinase Annotation – Jonathan Fletcher, MD Molecular Classification of Sarcoma Cell Lines – Matt van de Rijn, MD, PhD Molecular Classification of Sarcoma Cell Lines – Matt van de Rijn, MD, PhD Molecular Dissection of a Subset of Gene Fusion-Associated Sarcomas that Lack that Lack the Gene Fusion – Frederic Barr, MD Molecular Dissection of a Subset of Gene Fusion-Associated Sarcomas that Lack that Lack the Gene Fusion – Frederic Barr, MD The Role of RECQ Helicases in the Pathogenesis of Osteosarcoma – Lisa Wang, MD The Role of RECQ Helicases in the Pathogenesis of Osteosarcoma – Lisa Wang, MD

8. 8 Critical Mass Mobilizing our membership to get others involved in the cause Mobilizing our membership to get others involved in the cause Outreach to all medical institutions to educate and expand sarcoma community reach Outreach to all medical institutions to educate and expand sarcoma community reach Public relations campaign Public relations campaign Grassroots fundraisers Grassroots fundraisers Mobilizing our membership to get others involved in the cause Mobilizing our membership to get others involved in the cause Outreach to all medical institutions to educate and expand sarcoma community reach Outreach to all medical institutions to educate and expand sarcoma community reach Public relations campaign Public relations campaign Grassroots fundraisers Grassroots fundraisers

9. 9 Sarcoma Foundation of America Research Advocacy Mobilization of our constituents to write, call, fax, and email their representatives in government Mobilization of our constituents to write, call, fax, and email their representatives in government Creation of strategic alliances within DC to increase funding for sarcoma research Creation of strategic alliances within DC to increase funding for sarcoma research Focus on establishing a united, strong, and vocal sarcoma community Focus on establishing a united, strong, and vocal sarcoma community Mobilization of our constituents to write, call, fax, and email their representatives in government Mobilization of our constituents to write, call, fax, and email their representatives in government Creation of strategic alliances within DC to increase funding for sarcoma research Creation of strategic alliances within DC to increase funding for sarcoma research Focus on establishing a united, strong, and vocal sarcoma community Focus on establishing a united, strong, and vocal sarcoma community

10. 10 SFA - Membership

11. 11 SFA - Database

12. 12 SFA Website Hits Per Day

13. 13 SFA Funding

14. 14 The people in this room will find the cure(s) for sarcoma! We want to help.

15. 15 THANK YOU WWW.CURESARCOMA.ORGOrjody@curesarcoma.orgWWW.CURESARCOMA.ORGOrjody@curesarcoma.org