1. Conducting research on Positive Health, Dignity and Prevention to monitor the impact of the scale-up of testing and treatment on the lives of people living with HIV Thembi Nkambule SWANNEPHA, Swaziland July 2012, AIDS2012, Washington DC

2. Concrete evidence to guide our project  SWANNEPHA is part of the MaxART programme = Maximising ART for Better Health and Zero New Infections  Multi-disciplinary partnership, led by the MoH and involving national and international partners (e.g. CHAI, SAN!, SafAIDS, GNP+, UvA, SACEMA)  We need concrete evidence about realities on the ground to drive our thinking and our work 2

3. Methodology  People living with HIV led on a study (data collectors and interviews)  Collected data from 921 other people living with HIV in 22 clinics and 100 support groups  Asked about a number of areas affecting our lives (seven components of Positive Health, Dignity and Prevention) 3

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5. What did we find? People are coming very late for testing 5

6. Why people living with HIV think some stop taking treatment 6

7. What people think would happen if their status is disclosed 7

8. About discrimination experienced by PLHIV 8

9. Action taken to respond to discrimination 9

10. Services accessed since disclosing their HIV status 10

11. Important data for action  Informing stigma reduction initiatives -Production of materials on treatment support: positive messages and bold images -Male-focused health days: visible leadership of PLHIV -SMS messages in the M-Health programme: appropriate use of language, proper informed consent processes  Informing areas of priority for human rights monitoring -Access to HIV-related services, including HIV testing -Confidentiality and privacy -Supportive environment and attitudes in clinics and community -Quality counselling -Referrals within community for support (e.g. GBV) 11

12. More areas of action  Data to inform development of national policy -National Stigma and Discrimination Framework -Positive Health, Dignity and Prevention guidelines  Data to provide insights into areas for deeper qualitative research to be conducted by social science partners in the MaxART programme (e.g. what are the experiences of PLHIV who have not yet started treatment?)  Data to monitor impact of our programme – at the end of the programme, what has changed in the lives of people living with HIV? 12

13. Ngiyabonga! 13

14. The MaxART programme was made possible by the financial support of the Dutch Postcode Lottery and the leadership of the Ministry of Health, Kingdom of Swaziland