1. Leigh Vallance Chief Executive December 2013

2. Someone dies every minute. You only die once. The number of people dying each year will increase from 2015 onwards. Let’s do all we can to ensure as many of those deaths are good deaths.

3. Principles of a good death Respect To see death acknowledged as part of life To be treated with dignity, respect and privacy, according to our wishes To value each individual and the contribution we may still wish to make to our family, job or social network, in a caring and supportive way To have clear, honest and tailored information and good communication throughout illness and frailty

4. Time to Plan If appropriate, to be told clearly and compassionately the reality that death is coming To be provided, where possible, with a sense of how long illness may last and information about what can be expected, to allow time to plan To be given the opportunity to make a plan of care in advance, which takes account of our wishes and to have that respected by health, social care and all other services

5. Care To have access to end of life care in the location we choose, with every effort made to support this To have a named key worker who will organise and coordinate care, including where this cuts across organisational boundaries To have clear information about whom to contact around the clock and seven days a week if advice or care is needed at home

6. Care (continued) To be given every opportunity to take part in decisions which affect care. If the person who is dying is unable to do this then views of people close to them must be taken into account To receive speedy, practical help for the end of life To receive the best care and support with any social difficulties To have help to control physical pain and to alleviate emotional distress, if they occur

7. Support To have support with the practicalities of dying, death and matters after death To receive appropriate emotional or spiritual support, with our beliefs and values honoured To have access to appropriate specialist support, including, if required, for families, partners, carers and staff. This may be before or after death occurs

8. 10 July 2013 New research from Demos and Sue Ryder aims to encourage commissioners and providers to focus on what makes a good death, and drop the obsession with place of death. What do people want at the end of life? 78% - be free from pain and discomfort 71% - be surrounded by loved ones 53% - have privacy and dignity 45% - be in a familiar surrounding and be in a calm and peaceful atmosphere

9. 10 Questions to ensure good end of life care in your area Q1. Where are local people dying, and where are they being cared for before they die? Q2. What are people saying about the quality of care they and their loved ones have received locally? Q3. What local systems are in place to ensure that people who might be approaching the end of their lives have been identified and plans about their care can be co-ordinated? Q4. What services are available locally “at any time of day and night” to enable people to be cared for in the place that they want to be? Q5. What support is available locally for carers of people approaching the end of life, including into bereavement?

10. 10 Questions to ensure good end of life care in your area (continued) Q6. What is being done to ensure that local services are genuinely available and accessible to everybody in the local community? Q7. What training in end of life care are local organisations giving their staff? Q8. Has end of life care been identified as a local priority and who is providing local leadership and accountability? Q9. What local activities are being undertaken to raise public awareness about death, dying and bereavement and build people’s confidence in having discussions and making plans? Q10. What steps are being taken to involve local people and those with personal experience in the way services are shaped and evaluated? (National Council for Palliative Care)

11. Two Questions for the Health, Care and Well- Being Forum Do you want to adopt the principles of a good death? Should we be asking Bolton CCG and the Bolton Health & Well-Being Board for answers to the 10 questions to help deliver the Principles of a Good Death?