1. User-Led Organisations – What’s in it for users? 1984-2009: Celebrating 25 Years of Independent Living Promoting equality across the South Southampton Centre for Independent Living

2. Building sustainable ULO’s However, the important aspect to creating and sustaining sucessful ULO’s are: WHY users should control their support organisations; and HOW to ensure these organisations are based on existing CIL’s (i.e. working to the Social Model of Disability, Peer-support and the principles of Independent Living) Maybe a brief history lesson will help…

3. History of CIL Movement Origins in civil rights movements of the late 1960s, the Independent Living Movement grew out of the Disability Rights Movement, which began in the 1970’s Independent Living is a philosophy, a way of looking at disability and society, and has developed into a worldwide movement of Disabled People who work for self- determination, self-respect and equal opportunities The first Centre for Independent Living was founded by Ed Roberts, in Berkeley, California in 1972. Created to offer peer support; are run and controlled by Disabled People and work to the Social Model of Disability

4. History of CIL Movement 12 Basic Rights to Independent Living: Full ACCESS to our environment A fully accessible TRANSPORT system TECHNICAL AIDS/EQUIPMENT Accessible / adapted HOUSING PERSONAL ASSISTANCE Inclusive EDUCATION and TRAINING An adequate INCOME Equal opportunities for EMPLOYMENT Appropriate and accessible INFORMATION ADVOCACY (towards self advocacy) COUNSELLING Appropriate and accessible HEALTH CARE provision

5. SCIL’s Range of Enabling Services Supporting the empowerment of Disabled People through: Advice and Information on Self-Directed Support Peer Advocacy & Peer Mentoring Personal Development & Participation Promoting Disability Equality through: Training & Consultancy Consumer & Access Audits Practice & Learning Opportunities SCIL Campaigns for the rights of Disabled People and represents their views.

6. ULO’s Today: Finding it hard to survive – lack of Local Authority support and tendering rules Whilst we argue that we should have a right to a place at the table, the reality is that there are many happy to deny that right.

7. ULO’s Principles: (DoH Design Criteria) Run and Controlled by Disabled People or Carers Peer-support Independent Living & Social Model of Disability Campaign for human rights Provide advice and support to enable Disabled People to live independently ULO’s at the forefront of every important social policy advance in last 25 yrs But we must accept where the world has moved to; and move with it, Find new ways to be relevant

8. Local Authorities cannot implement their Personalisation Agenda or their equality duties without effective ULO’s? Keepers of Independent Living & Social Model Faith ULO’s have a critical role in enabling users to have an empowered voice – noone else should speak FOR Disabled People ULO’s Must be Campaigners (not just service providers) ULO’s Must challenge policies (Local & National) which limit the inclusion of Disabled People

9. But how can ULO’s sustain themselves? Successful organisations are successful because they are different – high quality and high principles WILL show through Must be more business like – what we have is valuable and unique, sell it (social enterprises) Must be enabled to provide a range of services that generate income Must work to empower Disabled People to develop their skills within ULO’s rather than expect them to just appear Become “Critical Friends” to Local Authorities Thinking “Outside of the Box”….

11. Thank You!