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Congresses Education Care standards Research and scientific activities Communication Commission on European Affairs Report - July 2007.

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Presentation on theme: "Congresses Education Care standards Research and scientific activities Communication Commission on European Affairs Report - July 2007."— Presentation transcript:

1 Congresses Education Care standards Research and scientific activities Communication Commission on European Affairs Report - July 2007

2 European Congress on Epileptology ECE The Hague 1996 Warsaw 1998 Florence 2000 Madrid 2002 Vienna 2004 Helsinki 2006 Berlin 2008 Rhodos 2010 ???? 2012 Co-organisation Germany / Israel Post Congress Satellite in St Petersburg Selection process to be started Jan 2008 Call for expression of interest from Chapters

3 European Congress outcome - Evaluations –Registrations –Abstracts –Scientific programme –Sponsorship –Expanditures –Surpluses Commission on European Affairs Report - July 2007 CEA budget CEA and EAC activities

4 Commission on European Affairs Report - July 2007 MADRID 2002 VIENNA 2004 HELSINKI 2006 Registrations 272534083509 Abstracts 645655 842 accepted Platform: 126 Poster: 703

5 Commission on European Affairs Report - July 2007 Helsinki vs Vienna Registration fees + 7% Sponsorship / Exhibition - 22% Total income - 6% Venue costs + 25% Abstract (Book, CD) + 150% (40 000 /104 000) ……………….…………….. Total expenditures + 17% Surpluses - 36%

6 Significant changes in Sponsorship –Several of the companies that had supported the ECE for many years were not in a position to do so for the congress in Helsinki –In some cases, the sponsors scaled down their total sponsorship contribution –At the same time, some companies new to the field of epilepsy showed an interest in supporting the congress. Commission on European Affairs Report - July 2007

7 New modalities of collaboration –New Drug Symposium Schwarz Pharma and Valeant Pharmaceuticals jointly hosted a satellite symposium –Orphan Drug Symposium Biocodex, Eisai and UCB contributed speakers and presentations to this Congress session. Commission on European Affairs Report - July 2007

8 Educational activities –Educational Courses –EUREPA activities –ILAE Commission on Education activities Developing guidelines for CEA support –Miscellaneous contributions Commission on European Affairs Report - July 2007

9 Commission on European Affairs Report - July 2007 Year2006200720082009 Residential (pharmacol.) Eilat Sept 2-9 Eilat Sept 6-13 Migrating Course Serbia May-June LithuaniaCzech Republic Contribution to other courses S- Servolo Baltic Sea S- Servolo EPODES (Surgery) Brno 19-23 March New Commission Geographical and Thematic distribution

10 Care Standards - Drugs –Generics –Rare epileptic diseases –Contribution to the colloquium on Status Epilepticus (London, April 2007) and European guidelines for the treatment of SE –European Project on Development of Epilepsy Surgery Programme (EPODES) Commission on European Affairs Report - July 2007

11 Regulatory guidelines AEDs Developers Pharma industry Evidence-based Assessment / guideline on AEDs clinicians R C Trials Study results Scientific data AES ILAE Nice Others

12 Contact group with European Drug Agency (EMEA) –CEA official correspondent of the EMEA –Exchange of views on AEDs development and use –Discussions on specific issues like Orphan drugs –Revision of the EMEA guideline on AEDs in 2007-2008 –Efficacy working Party of the CHMP –Rapporteurs –Member state agencies –Scientific community (Europe, Worldwide, FDA) –CEA-ILAE through its contact group Commission on European Affairs Report - July 2007

13 EUREPEAN PROJECT ON DEVELOPMENT OF EPILEPSY SURGERY PROGRAM (EPODES) Ç.Özkara, W. Emde Boas, I. Rektor, P. Halasz, K. Malmgren, H. Stefan, C. Baumgartner A-) Courses: : 19-23 March 2008, Brno (I. Rektor) Keynote speakers and case presentations by students and tutors B-) Fellowships: Three months of visiting a center specialized in surgery –5 people/year –Endorsment required for application (fellowship should be part of the plan of development) –Holding a position in a “center” –Host centers prerequists should be identified C-) Visiting professorships: 1 week –3 people / year –Visit will be on request of the visited center from the host centers

14 Research and scientific activities –Financial support to the MORTIMUS study –Support to EURAP, FONDE projects –Support to the EPICURE prg –Zurich Update Meeting (2007) –IGE Symposium, Bridging basic and clinical sciences, Antalya-Turkey (2007) Commission on European Affairs Report - July 2007

15 Political action in favour of Epilepsy Research –Promote and facilitate Epilepsy Research across the EU grant procedures –Defend the presence of Epilepsy-related topics in the calls for EU grants (FrameWork Prg 7, 2006-2013) –Need for defining and expressing our research objectives Commission on European Affairs Report - July 2007 Epilepsy research priorities for the next decade: A representative view of the European Community

16 Communication –Website –Global campaign (Thank you for filling the questionnaire in your files) –EUCARE Commission on European Affairs Report - July 2007

17 Commission on European Affairs Report - July 2007 Milda Endziniene (Lithuania) Alla Guekht, EAC Chair,(Russia) Cigdem Ozkara, CEA Secretary, (Turkey) Bettina Schmitz (Germany) Michel Baulac, CEA Chair, (France) Meir Bialer, CEA Treasurer, (Israel) Peter Halasz (Hungary) Svein Johannessen, EAC secretary, (Norway) Frederico Vigevano (Italy) ILAE Financial Office and ILAE Headquarters Office

18 Commission on European Affairs Report - July 2007

19 Budget Commission on European Affairs Report - July 2007 ILAE Financial Office

20 Commission on European Affairs Report - July 2007

21 Commission on European Affairs Report - July 2007

22 Miscellaneous Zurich Meeting (2007) Idiopathic generalised epilepsies Symposium, Bridging basic and clinical sciences, Antalya-Turkey (2007) Commission on European Affairs Report - July 2007


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