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Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European.

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Presentation on theme: "Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European."— Presentation transcript:

1 Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups Péter Hegyi on behalf of the Hungarian Pancreatic Study Group Chair of HPSG SZEGED, HUNGARY INTRODUCTION

2 Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups INTRODUCTION OF GENERAL REGISTRY Péter Hegyi on behalf of the Hungarian Pancreatic Study Group Chair of HPSG SZEGED, HUNGARY

3 Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport GENERAL REGISTRY ACUTE PANCREATITIS CHRONIC PANCREATITIS PANCREATIC CANCER AUTOIMMUNE PANCRETITIS CLINICAL DATA + BLOOD FOR GENETIC TESTING 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups INTRODUCTION OF GENERAL REGISTRY

4 Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups INTRODUCTION OF GENERAL REGISTRY Single centre, small number of patients, retrospective and insufficient data analyses

5 Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups INTRODUCTION OF GENERAL REGISTRY Single centre, small number of patients, retrospective and insufficient data analyses

6 Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups INTRODUCTION OF GENERAL REGISTRY Single centre, small number of patients, retrospective and insufficient data analyses

7 Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups INTRODUCTION OF GENERAL REGISTRY Single centre, small number of patients, retrospective and insufficient data analyses

8 Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups INTRODUCTION OF GENERAL REGISTRY Single centre, small number of patients, retrospective and insufficient data analyses

9 Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups INTRODUCTION OF GENERAL REGISTRY What do we offer?

10 Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups INTRODUCTION OF GENERAL REGISTRY The data belong to those who uploaded. Investigators can see only there own data. Nobody can see your data. However, if you have an idea you write a page summary and will circulate among us.

11 Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups INTRODUCTION OF GENERAL REGISTRY The data belong to those who uploaded. Investigators can see only there own data. Nobody can see your data. However, if you have an idea you write a page summary and will circulate among us. Prospectively collected data, multicentre collection, high numbers

12 Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups INTRODUCTION OF GENERAL REGISTRY Prospectively collected data, multicentre collection, high numbers Single centre, small number of patients, retrospective and insufficient data analyses SAME AMOUNT OF WORK

13 Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups INTRODUCTION OF GENERAL REGISTRY GENETIC STUDIES 3 other studies are running…..

14 Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport GENERAL REGISTRY LONGITUDINAL STUDIES 2015 2020 AP CP CP-AP PC 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups INTRODUCTION OF GENERAL REGISTRY

15 Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups INTRODUCTION OF GENERAL REGISTRY UNIFORM DATA COLLECTION IS CRUCIAL!

16 THE HUNGARIAN PANCREATIC STUDY GROUP IS COMMITTED TO IMPROVING THE LIVES OF PATIENTS SUFFERING FROM PANCREATIC DISEASES! www.pancreas.hu Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups INTRODUCTION OF GENERAL REGISTRY


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