1. Jose A. Pineda, MD MSCI Thomas B. Rice, MD Sheila Hanson, MD

2. Regardless of the primary diagnosis, neurological outcome has the largest impact on quality of life

3. Neurological Diagnosis and Pediatric Intensive Care 3X use of Intensive Care and account for 50% of deaths In the ICU: 3X mortality, significantly longer LOS, higher median cost

4. VPS TBI Mortality Pineda et al, 2013

5. - 91 children urgently admitted to the ICU for resuscitation - 1 mo abnormal adaptive behavior functioning - Also abnormal functional outcome and poor quality of life Ebrahim et al, 2013

6. Sites included in the PILOT data collection Children’s Hospital of Los Angeles Children’s Hospital of Wisconsin St. Louis Children’s Hospital

7. PILOT study includes all cases closed in 2014- Q4 Data Collectors collected as many cases as possible from February 12 – March 4

8. Total Discharges: Number of cases discharged in 2014-Q4 Total Eligible Cases: Number of cases that met NCC inclusion criteria Cases Collected in PILOT: Number of cases with NCC collected during PILOT period

9. Demographic Data

10. 25% (n=26) of the cases in the PILOT had a head trauma 80.1% (n=21) of the head trauma cases had an ISS score Min: 8 Median: 26 Average: 23.86 Max: 50 Trauma Information

11. Pineda et al, 2013

13. Trauma Information (cont.) 11.5% (n=3) of the head trauma cases had CPR during pre-hospital care 19.2% (n=5) of the head trauma cases had a clinical seizure documented during pre-hospital care 42.3% (n=11) of the head trauma cases needed supplemental oxygen provided by EMS during pre-hospital care

14. ICU Discharge Data (n=104)

15. Preliminary Data Collection Times (n=104)

16. Data Entry Forms

17. Trauma Information

18. Pre-Hospital Care

19. ED Care

20. ED Care (continued)

21. Non Accidental Trauma

22. ICU Data

23. ICU Data - Daily

24. ICU Data – Daily (Continued)

25. ICU Discharge

26. Daily PILOT

27. Validations

28. NCC Diagnosis Inclusion Criteria

29. NCC Diagnosis Inclusion Criteria (continued)

30. Conclusions Pilot data in the NCC module confirms this is a great opportunity Consider participating: good return on investment Need to initiate hypothesis driven projects as soon as possible

31. Barry Markowitz Mary Hartman Casey Lauer Brian Reisner Christopher Cubley Data Entry Team Acknowledgments