1. Organ Donation Past, Present and Future Donor Identification and Referral Michelle Tyler – Team Manager Dr Malcolm Watters 10 th June 2013 1 EASTERN

2. Organ Donation Past, Present and Future Regional Data 2 Michelle Tyler – Team Manager EASTERN

3. -------- National rate 95 97 88 93 98 86 87 91 95 84 89 Referral rate (%) 0 20 40 60 80 100 Team EasternLondon Midlands North West Northern Ireland Scotland South Central South East South Wales South West Yorkshire 1 April 2012 to 31 March 2013, data as at 4 April 2013 3 rd Organ Donation Past, Present and Future 3 EASTERN Eastern DBD referral rate

4. 1 April 2012 to 31 March 2013, data as at 4 April 2013 Organ Donation Past, Present and Future 4 EASTERN 1Southend University Hospital NHS Foundation Trust 2Bedford Hospital NHS Trust 3Luton and Dunstable Hospital NHS Foundation Trust 4The Queen Elizabeth Hospital, King's Lynn NHS Foundation Trust 5Basildon and Thurrock University Hospitals NHS Foundation Trust 6Colchester Hospital University NHS Foundation Trust 7Peterborough and Stamford Hospitals NHS Foundation Trust 8James Paget University Hospitals NHS Foundation Trust 9Ipswich Hospital NHS Trust 10West Suffolk NHS Foundation Trust 11Cambridge University Hospitals NHS Foundation Trust 12Norfolk and Norwich University Hospitals NHS Foundation Trust 13Kettering General Hospital NHS Foundation Trust 14Mid Essex Hospital Services NHS Trust 15Hinchingbrooke Health Care NHS Trust 16The Princess Alexandra Hospital NHS Trust 17West Hertfordshire Hospitals NHS Trust 18East and North Hertfordshire NHS Trust

5. -------- National rate 80 72 54 72 81 52 42 54 56 59 60 65 Referral rate (%) 0 20 40 60 80 100 Team EasternLondon Midlands North West Northern Ireland Scotland South Central South East South Wales South West Yorkshire 1 April 2012 to 31 March 2013, data as at 4 April 2013 Organ Donation Past, Present and Future 5 2 nd Eastern DCD referral rate EASTERN

6. Referral rate (%) 0 20 40 60 80 100 Number of imminent death anticipated patients 0102030405060708090100110120 1 10 11 12 13 14 15 16 17 18 2 3 4 5 6 7 8 9 TrustNational rate95% Lower CL 95% Upper CL99.8% Lower CL99.8% Upper CL Organ Donation Past, Present and Future 6 Eastern DCD referral rate EASTERN 1Southend University Hospital NHS Foundation Trust 2Bedford Hospital NHS Trust 3Luton and Dunstable Hospital NHS Foundation Trust 4The Queen Elizabeth Hospital, King's Lynn NHS Foundation Trust 5Basildon and Thurrock University Hospitals NHS Foundation Trust 6Colchester Hospital University NHS Foundation Trust 7Peterborough and Stamford Hospitals NHS Foundation Trust 8James Paget University Hospitals NHS Foundation Trust 9Ipswich Hospital NHS Trust 10West Suffolk NHS Foundation Trust 11Cambridge University Hospitals NHS Foundation Trust 12Norfolk and Norwich University Hospitals NHS Foundation Trust 13Kettering General Hospital NHS Foundation Trust 14Mid Essex Hospital Services NHS Trust 15Hinchingbrooke Health Care NHS Trust 16The Princess Alexandra Hospital NHS Trust 17West Hertfordshire Hospitals NHS Trust 18East and North Hertfordshire NHS Trust

7. Organ Donation Past, Present and Future Identification and Referral 7 Dr Malcolm Watters South Central Regional CLOD

8. Timely Identification and Referral of Potential Organ Donors Organ Donation Past, Present and Future www.odt.nhs.uk

9. Session Objectives 9 Organ Donation Past, Present and Future Understand difficulties with donor identification and referral Recognise benefits of improving elements of the process – Increased identification and referral – Timely referral – Responsiveness to referral Consider which of the proposed methods of identification and referral may work in your hospital

10. UK rates of referral Organ Donation Past, Present and Future 91% 52%

11. Overall timings Organ Donation Past, Present and Future

12. Aims of Strategy 100% Identification of potential Donors 100% Referral of Potential Donors 100% Timely Referral Implement NICE Guidance The consideration of donation should be core ICU / ED and part of all end of life care plans. Timely referral promotes this possibility Organ Donation Past, Present and Future

13. NICE Guideline 135 Organ Donation Past, Present and Future

14. British Medical Association 2012 The research data -------- showed that the use of clinical triggers and a requirement to refer according to standard criteria led to an increase in both referrals and donors. It is hoped that implementation of the NICE guideline will result in early and consistent donor referral. Organ Donation Past, Present and Future

15. General Medical Council 2010 I”f a patient is close to death and their views cannot be determined, you should be prepared to explore with those close to them whether they had expressed any views about organ or tissue donation, if donation is likely to be a possibility.” “You should follow any national procedures for identifying potential organ donors and, in appropriate cases, for notifying the local transplant coordinator.” Decisions to limit or withdraw treatments in potential DCD donors MUST be in compliance with national End of Life Care policy. Organ Donation Past, Present and Future

16. UK Donation Ethics Committee “There is no ethical dilemma if the treating clinician wishes to make contact with the SN-OD at an early stage, while the patient is seriously ill and death is likely, but before a formal decision has been made to withdraw life-sustaining treatment.” [“Benefits] include establishing whether there are contra-indications for organ donation…… Other practical and organisational factors might be relevant – if the SN-OD is based at a distant location then early contact can help to minimise distressing delays for the family.” Organ Donation Past, Present and Future

17. Objectives, benefits and outcomes All potential donors are identified and referred All donors are referred in a timely fashion SN-ODs are deployed in a way that improves responsiveness All patients are given the option of donation Access to clinical advice Prompt donor optimisation Resolution of potential legal obstacles Early assessment of marginal donors Early tissue typing / screening Planning the family approach Reduction in delays for families and units Increased donor numbers Improved consent / authorisation rates Increase in donor organs Better experience for families and staff Organ Donation Past, Present and Future

18. NHSBT Strategy Implementation not publication Key area for collaboration between hospitals and donor care teams Very clear emphasis on benefits – How not who Suite of options Clarity over implementation Organ Donation Past, Present and Future

19. Strategy proposals Every hospital should have a written policy for the identification and timely referral of all potential donors Every donating area within a given hospital adopts a consistent approach As far as possible ‘decouple’ early referral from individual clinician Donation Committees and SN-OD teams should collaborate to develop and implement a policy that ensures that all potential donors are identified and referred in a timely fashion. Organ Donation Past, Present and Future

20. 1. Daily visit by SN-OD Organ Donation Past, Present and Future

21. 2. Early daily phone call Organ Donation Past, Present and Future

22. 3. Daily ICU team safety brief Organ Donation Past, Present and Future

23. North Bristol Trust ICU Safety Brief

24. 4. Standard Operating Procedure Organ Donation Past, Present and Future

25. Midlands Standard Operating Procedure Organ Donation Past, Present and Future

26. 5. Nurse led referrals Organ Donation Past, Present and Future

27. Summary 27 Organ Donation Past, Present and Future Donation should be a element of end of life care Make identification and referral routine business of the unit. This decouples early referral from the individual clinician caring for the patient Implement or develop a solutions /policy for your individual hospitals adopt to timely referral Ensure consistency within a given hospital

28. Organ Donation Past, Present and Future 28

29. What are the barriers to implementing the NICE guidelines in your unit: any solutions? Organ Donation Past, Present and Future 29  Whichever is the earlier, either: Use trigger factors in patients with a catastrophic brain injury The absence of one or more cranial nerve reflexes AND a GCS of 4 or less that is not explained by sedation  And / or a decision is made to perform brainstem death tests. The intention to withdraw life-sustaining treatment in patients with a life-threatening or life-limiting condition which will, or is expected to, result in circulatory death.