1. Community Task Force on Oral Health for Individuals with Developmental Disabilities Eastman Institute for Oral Health in partnership with the Golisano Foundation Lenora A. Colaruotolo, LMSW March 12, 2012

2. Consumer Perceptions & Satisfaction Purpose of workgroup: To describe the perceptions and satisfaction with oral health status and available resources for individuals with developmental disabilities

3. Work Group Members Karen Black, Public Relations Director, EIOH Lenora A. Colaruotolo, Social Worker, EIOH Doug Fisler, Parent Representative, Heritage Christian Services Angela Huss, Social Worker, Strong Center for Developmental Disabilities/Kirch Center

4. Work Group Members Dr. Sangeeta Gajendra, Clinical Chief Community Dentistry, EIOH Beth Kettell, Librarian, EIOH Robert Marketell, Regional Director, Genesee & Western Regions Special Olympics New York Laura Robinson, Faculty, Division of Neurodevelopmental & Behavioral Pediatrics Liz Sheen, Nurse Supervisor, CP Rochester

5. Strategy – Phase I Information Gathering Define what information we want to gather (who, what, & why) Identify collateral contacts Determine methods for gathering information

6. Assessment Questions WHO  individuals  caregivers (family, parent/guardian)  formal caregivers/agency staff  residential habilitation provider WHAT  experience (expectations/perception, actual)  access  satisfaction  dental health status

7. Assessment WHY  Identify Gaps: unmet needs providers/provider knowledge barriers to care  Improve Oral Health Status

8. Collateral Contacts ARC Monroe County ARC Orleans County Continuing Development Services Fingerlakes Parent-2-Parent Heritage Christian Services Ibero American Action League Lifetime Assistance Mary Cariola Children’s Center Urban League

9. Information Gathering Methods Surveys (on-line, e-mail, paper copy) Focus Groups

10. Work Group Progress 4 meetings 1.January 26 th 2.February 16 th 3.February 20 th (webinar) 4.March 1 st Develop survey instrument Plan survey distribution

11. Work Group Contact Information To take survey on-line, go to: https://www.surveymonkey.com/s/eiohdd2 To request survey in PDF format: E-mail Lenora at: Lenora_Colaruotolo@urmc.rochester.edu Call Lenora at (585)275-6820 To request paper copies & discuss return options: Call Lenora at (585)275-6820

12. We welcome your thoughts & ideas Thank you!