1. Types and Levels of Caregiving Continuum of Caregiving

2. Four Kinds of People in this World Those who have been caregivers, Those who are caregivers, Those who will be caregivers, Those who will need caregivers.

3. Primary Illnesses -ALL

4. Primary Illnesses -Older

5. Principle of Substitution Spouses Adult daughters Daughter-in-law Sons Other relatives Friends & Neighbors

6. Types of Caregiver Formal Informal

7. Types of Caregiving Personal care Medical care Mental health care Emotional care

8. Levels of Burden Activities of Daily Living ADLs Instrumental Activities of Daily Living IADLs IADLs ADL IADL

9. ADLs and IADLs Activities of Daily Living Bathing Dressing Walking Toileting Transferring Eating Instrumental Activities of Daily Living Transportation Shopping Housework Finances Cooking Taking meds Arranging services

10. Extension Programs: ADLs and IADLs Activities of Daily Living Bathing Dressing Walking Toileting Transferring Eating Instrumental Activities of Daily Living Transportation Shopping Housework Finances Cooking Taking meds Arranging services

11. Levels of Burden-Caregiving Level 1 Level 2 Level 3 Level 4 Level 5 Total33%17%15%21%10% 9+ Hours Week 2%59%50%100% Mean Hrs/Week 3.5 hrs.9.8 hrs.12 hrs.33 hrs.87 hrs. Mean # IADLs 3.144.35.25.9 Mean # ADLs 0.42.22.94.2

12. Continuum of Caregiving Level 1Independent Level 2Semi-Independent Level 3Semi-Dependent Level 4Dependent @ Home Level 5Dependent Institutional

13. Housing Choices Work & Caregiving Emotional Issues End-of-Life Legal Home Modification Independent: Care 1 Errands Social and emotional support Assistance with heavy work Planning for potential needs

14. Housing Choices Work & Caregiving Finances Emotional Issues End-of-Life Legal Home Modification Semi-Independent: Care 2 More time needed Expanded help with errands, heavy housework Provide guidance for financial, legal and healthcare management Beginning ADL needs

15. Housing Choices Work & Caregiving Finances Emotional Issues End-of-Life Legal Home Modification Semi-Dependent: Care 3 Consider formal steps with finances, legal issues. 2+ ADLs require more direct care time More direct involvement: Time and in-person

16. Dependent @ Home: Care 4 Nearly full-time job Support for ADLs & IADLs increasing Caregiver needs respite Utilize myriad formal supports

17. Dependent Institutional: Care 5 More than full-time job -80+ hours Support for most ADLs & IADLs Institutional care

18. Housing Choices Work & Caregiving Finances Emotional Issues End-of-Life Adaptives Legal ADLs IADLs Home Modification Integrated Continuum of Care

19. Credits This presentation adapted for XXXXX county and presented by: Xxxxxxxx Xxxxxxxx County Cooperative Extension Office Xxxxxxxx phone number/address/email This presentation prepared by: Carolyn S. Wilken, Ph.D., M.P.H. Associate Professor, FYCS Extension Specialist, Gerontology University of Florida cswilken@ifas.ufl.edu