1. What is the PRSB and what’s in it for me? Marlene Winfield Non-executive Director for Patient and Public affairs marelenwinfield@gmail.com

2. What is the PRSB? Registered as a Community Interest Company (CIC) in May 2013 Delivers and supports standards for the structure and content of electronic records used in health and social care Aims to reflect the needs of those who commission, provide and receive care - and those who provide the IT systems that enable care

3. How do we deliver those aims? Quality-assure existing and new standards according to clear criteria Support those developing standards, for example by putting them in touch with professional leads/experts /organisations who can help them Undertake consultations and help others with their consultations Provide considered opinions, information, advice and implementation guidance Publish quality assured standards

4. We aim to be a unified voice that ensures care record standards: Reflect the way people work together Reflect current best practice Enable information to cross boundaries Enable good outcomes Enable data to be aggregated and used for research, management, and planning And can be adopted by information systems

5. Unifying features We have representation from the four nations and links into their relevant initiatives We have been confirmed as 'the preferred route for clinical involvement in patient record keeping national activities' by the National Informatics Board (previously Informatics Services Commissioning Group - ISCG)

6. Range of founder members National Voices (umbrella patient group organisation) Royal College of Physicians Allied Health Professions Federation Royal College of Nursing Royal College of General Practitioners Royal College of Pathologists Royal College of Surgeons of England Royal College of Psychiatrists Royal College of Paediatrics and Child Health Academy of Medical Royal Colleges Association of Directors of Adult Social Services British Computer Society

7. What’s in it for me as a patient?

8. Next year I can access my GP record Check it for accuracy Be an informed partner in my care Manage my prescriptions and appointments Check immunisations, test results, letters Use on holiday if I am ill Link up my care in the community Keep my relatives informed

9. My hospital records are not far behind

10. Increasingly I might also want to: Record my self-monitoring information Add medicines I prescribe for myself Add to my interactive care plan and check what others are doing Order routine tests and check test results Keep a health diary Record my appointments and set reminders All this has implications for you as IT system suppliers

11. In the past there have been disconnects... Between those who develop records and those who use them Between those who supply IT systems and those who develop records Between those who use records and those who supply the IT systems And between everyone and the patient!!!!!

12. The disconnects meant What people built was not always wanted What people wanted couldn’t always be built No one considered the patient’s needs as a future record user or system user

13. Through shared standards, the PRSB aims to bring the pieces together

14. So that when care records are developed - and systems enable them - everyone is happy, including me!