1. Electronic Dissemination of Hematologic Cancer Survivorship Materials with Application to the Adolescent and Young Adult (AYA) Community OHSU Cancer Institute CDC Meeting

2. ADOLESCENT AND YOUNG ADULT (AYA) ONCOLOGY
Cancer diagnosed in year-olds: 65,000 – 70,000 per year
Leading natural cause of death
In contrast to younger and older cancer patients, survival rates for young adults have not increased since 1975
Young adults with cancer face a variety of unique short- and long-term medical and psychosocial issues

3. LYMPHOMA AND LEUKEMIA IN AYA

4. AVERAGE ANNUAL PERCENTAGE CHANGE
SEER Monograph 2006

5. NHL SURVIVAL
SEER Monograph 2006

6. AGE DISPARITY: LYMPHOMA AND LEUKEMIA SURVIVAL
SEER Monograph 2006

7. AYA Oncology Program: Mission
Provide comprehensive and individualized diagnostic, therapeutic, supportive, and long-term care transition services to adolescents and young adults (age 15-40) diagnosed with cancer
Serve as a research base and informatics hub for AYA oncology
Integrate these activities to create and share knowledge of AYA oncology

8. TARGETING AYA POPULATION
Multiple sites for care/Loss to follow-up
Lack of insurance
Mobility
Unique tumor types
Distant specialists and centers
Less familiar therapeutic regimens and late effects
Lack of tools and education for empowering AYA patients to manage survivorship

9. Internal Informatics Dissemination

10. Electronic Evaluation

11. Active Areas of Focus
Evaluation and adoption of minimal elements for the e-Survivorship Treatment Summary
Development and Dissemination of Educational Materials for Survivors, their families and caregivers
Tool Deployment and Integration with other efforts (Survivorship Centers, caBIG, Clinical Trials Matching etc)