1. New Horizons for Children and Young Adults with Medical Complexity in New York Thursday, November 12, 2015 New Group Home Model for Young Adults with Medical Complexity

2. Moderator: Richard G. Timo, Ph.D., Director of Psychology and Behavior Supports - Family Residences and Essential Enterprises Panel:  Anita Dowd-Neufeld, Sr. Vice-President – Family Residences and Essential Enterprises  Judith Vigliotti, R.N., Nurse Manager Childrens 4, St. Mary’s Hospital for Children  Josephine Rumman, R.N., Assistant Director of Nursing - Family Residences and Essential Enterprises

3. New Group Home Model for Young Adults with Medical Complexity Vision Statement: TOGETHER…FINDING THE RIGHT SOLUTION FOR ANY NEED + “Emerging Population”

4. New Group Home Model for Young Adults with Medical Complexity Spring 2014 St. Mary’s identifies 17 older MFC & MFYA enrolled in SNF in need of complex skilled nursing care. Several hundred more in St. Mary’s home care programs. St. Mary’s partners with Family Residences and Essential Enterprises (FREE) to address the needs of this population. Fall 2014 BIP Transformation Fund Awarded to St. Mary’s in partnership with Family Residences and Essential Enterprises. Awarded to assess and respond to the needs of aging out Medically Fragile Young Adults with I/DD diagnosis.

5. New Group Home Model for Young Adults with Medical Complexity  What is a BIP?  New York State Balancing Incentive Program (BIP) Transformation Fund was created to provide an unprecedented opportunity for organizations to make strategic investments to transform non-institutional Long Term Services and Supports (LTSS) for individuals with developmental disabilities.

6. New Group Home Model for Young Adults with Medical Complexity Project Goals Develop a medical supervised IRA model to support MFYA with I/DD who are aging out of pediatric care. Identify initial residents and carry out transitional family planning. Conduct formal assessments of needs of young adults with medical complexity in NYS as well as housing stock currently available to them.

7. New Group Home Model for Young Adults with Medical Complexity Project Goals Convene a summit to provide an overview of this model and the needs of MFC/MFYA. Identify, secure, and prepare a viable facility to serve as the pilot residence. Recruit and train pilot team members. Open the first medical IRA designed to better serve young adults with I/DD and medically fragile conditions. *Note: some goals conducted with non-BIP funding

8. New Group Home Model for Young Adults with Medical Complexity The PROCESS:  Office for People With Developmental Disabilities (OPWDD)  DDP / TABS  Front Door

9. New Group Home Model for Young Adults with Medical Complexity STAKEHOLDERS: Children and Young Adults Parents and Families Community Government Model for NYS

10. New Group Home Model for Young Adults with Medical Complexity Government and Community  NYS Mental Hygiene Law, Section 41.34 Site Selection of Community Residential Facilities  Padavan Law  NYS Olmstead Plan  Neighbors

11. New Group Home Model for Young Adults with Medical Complexity Medical Model  From PEDIATRIC to ADULT Healthcare  Staffing – Nursing and Direct Support  Policies and Procedures (DOH + OPWDD)  External Supports

12. New Group Home Model for Young Adults with Medical Complexity Medical Model  24/7 Services  Team member training to initiate at St. Mary’s  Respiratory Needs  Hospital Accessibility  Integrated Health Case Reviews – Biopsychosocial model

13. New Group Home Model for Young Adults with Medical Complexity FACILITY Parent and Family Preferences Property Search Other Program Models

14. New Group Home Model for Young Adults with Medical Complexity Photos of Some of Family Residences and Essential Enterprises’ Existing Residences ………….

23. New Group Home Model for Young Adults with Medical Complexity TRANSITIONS Children / Young Adults Families Balancing Safety with Letting Go

24. New Group Home Model for Young Adults with Medical Complexity Transition eToolkit website: http://etoolkit.stmaryskids.org Online Resource Directory: http://resources.stmaryskids.org/

25. New Group Home Model for Young Adults with Medical Complexity GROWTH  Health  Social  Emotional  Self Actualization…

26. New Group Home Model for Young Adults with Medical Complexity  Disseminate best practices and population assessment findings to scale project statewide.

27. New Group Home Model for Young Adults with Medical Complexity Thank you! Contact Information:  Richard G. Timo, Ph.D. Rtimo@familyres.orgRtimo@familyres.org  Anita Dowd-Neufeld Adowd@familyres.orgAdowd@familyres.org  Josephine Rumman, R.N. Jrumman01@familyres.orgJrumman01@familyres.org  Judith Vigliotti, R.N. Jvigliotti@stmaryskids.orgJvigliotti@stmaryskids.org