1. b Sondra Williams, Adult with Autism and PTSD Survivors Voice/Advocate Pam Berry – DODD Kim Kehl, OMHAS Ohio Association of County Boards 32 nd Annual Convention December 3, 2015

2. Adverse Childhood Experiences Study Adverse Childhood Experiences Study Collaboration between Kaiser Permanente and CDC 17,000 patients undergoing physical exam provided detailed information about childhood experiences of abuse, neglect and family dysfunction (1995-1997) 2

3. ACE Categories Abuse Emotional Physical Sexual Neglect Emotional Physical Household Dysfunction Mother Treated Violently Household Substance Abuse Household Mental Illness Parental Separation or Divorce Incarcerated Household Member 3

4. What is Trauma? Individual trauma results from an event, series of events, or a set of circumstances that is experienced by an individual as physically or emotionally harmful or threatening and that has lasting adverse effects on the individual’s functioning and physical, social, emotional, or spiritual well- being (SAMHSA) 4

5. What is Trauma? The individual’s experience of these events or circumstances helps to determine whether it is a traumatic event. The long-lasting adverse effects on an individual are the result of the individual’s experience of the event or circumstance. 5

6. The Science on ACEs... 6 New lens through which to understand the human story Why we suffer How we parent, raise and mentor our children How we might better prevent, treat and manage illness in our medical care systems How we can recover and heal on deeper levels

7. ACE Pyramid 7

8. Effects of Trauma on Neurocognitive Development 8

9. Potential Traumatic Events Slide 9 Abuse EmotionalSexualPhysicalDomestic violenceWitnessing violenceBullyingCyberbullingInstitutional Loss DeathAbandonmentNeglectSeparationNatural disasterAccidentsTerrorismWar Chronic Stressors PovertyRacismInvasive medical procedureCommunity traumaHistorical trauma Family member with substance use disorder

10. almazarconsulting@yahoo.com TraumaticEvent Hopelessness Insomnia Intrusive Memories Nightmares Shame & Self Hatred Somatic Symptoms Dissociation Self Destructive Behavior Eating Disorders Substance Abuse Generalized Anxiety Panic Attacks Depression Numbing Hypervigilence Agitation Fisher, 2005 Adaptive Responses When Overwhelmed

11. Additional Signs of Trauma Flashbacks or frequent nightmares Sensitivity to noise or to being touched Always expecting something bad to happenNot remembering periods of your lifeFeeling emotionally numbLack of concentration; irritability Excessive watchfulness, anxiety, anger, shame or sadness Slide 11

12. Experience of Trauma Experience of trauma affected by: HowWhenWhere How Often Slide 12

13. Prevalence of Trauma Exposure to trauma is especially common among individuals with Mental illness Substance use disorders Developmental disabilities 13

14. Trauma in person with developmental disabilities 14 About 70 % of developmentally disabled people report being physically, and sexually assaulted, neglected or abused (Columbus Dispatch, 2015) About 90 % of the reported multiple occurrences (Columbus Dispatch, 2015) Fewer than 40% of people reported this abuse to authorities (Columbus Dispatch, 2015) Those that did saw an arrest rate of less than 10% (Columbus Dispatch, 2015)

15. Trauma in person with developmental disabilities 15 One out of every three children and adults with developmental disabilities will experience abuse in their lifetime (Envision 2014) More that 90% of the time, that abuse will be inflicted by the very person they rely on to protect and support them (Envision 2014) With limited verbal skills, they may not have been able to tell anyone. And just because the actual traumatic event is over, it continues to play out in one's response to future situations (Envision 2014) Choose to judge behavior less and seek to understand what might be underneath and behind it; we must always be particularly cautious of seeing behavior as attention-seeking or manipulative (Envision 2014)

16. Trauma in person with developmental disabilities 16 Abuse and neglect have profound influences on brain development. The more prolonged the abuse or neglect, the more likely it is that permanent brain damage will occur. Not only are people with developmental disabilities more likely to be exposed to trauma, but exposure to trauma makes developmental delays more likely. Joan Gillece, Ph.D.,NASMHPD

17. Trauma in person with developmental disabilities 17 Cognitive and processing delays that interfere with understanding of what is happening in abusive situations, and Feelings of isolation and withdrawal due to their differences, which may make them more vulnerable to manipulation because of their increased responsiveness to attention and affection. Joan Gillece, Ph.D., NASMHPD

18. Trauma in person with developmental disabilities 18 Clients with DD and histories of trauma often have profound mistrust and feeling of betrayal about caretakers, treatment providers and the social services systems in general. Person with DD enter relationships expecting to be hurt, neglected and abandoned. Healthy, healing relationships challenge those expectations.

19. 19 Increase in number of people with DD who: Have a co-occurring mental health issue Have criminal justice histories Are incarcerated Cycle across systems and/or across providers Are at risk for harm to self or others System Indicators of Failure to Recognize and Address Trauma

20. 20 Providers of services to DD clients can feel hopeless that clients cants change ingrained behavior They witness clients abandoned by families They see first hand how clients are stigmatized and viewed as “other” What about the caretakers?

21. ACE Score and Health Risk As the ACE score increases, risk for these health problems increases in a strong and graded fashion: Alcoholism and alcohol abuse Chronic obstructive pulmonary disease (COPD) Depression Hallucinations Fetal death Health-related quality of life Illicit drug use Ischemic heart disease (IHD) Liver disease Risk for intimate partner violence Multiple sexual partners Sexually transmitted diseases (STDs) Smoking Suicide attempts Unintended pregnancies Early initiation of smoking Early initiation of sexual activity Adolescent pregnancy HIV 21

22. ACE score and current smoking 22 A child with 6 or more categories of adverse childhood experiences is 250% more likely to become an adult smoker. Smoking may not be caused by existence of local gas station availability or genetic predisposition

23. Childhood experiences and adult alcoholism 23 A 500% increase in adult alcoholism is directly related to adverse childhood experiences. 2/3rds of all alcoholism can be attributed to adverse childhood experiences This certainly suggests that alcoholism, contrary to popular belief, may not be simply a disease – but rather be a means by which the individual has learned to ease the pain of the trauma – or to balance his/her nervous system – e.g. sooth anxiety. Important ALWAYS to address and treat trauma along with alcoholism. Alcoholic

24. ACE score and IV drug use 24 A male child with an ACE score of 6 has a 4,600% increase in the likelihood that he will become an IV drug user later in life 78% of drug injection by women can be attributed to ACEs

25. Childhood experiences underlie suicide risk 25 The likelihood of adult suicide attempts increased 30-fold, or 3,000%, with an ACE score of 7 or more.

26. How does ACES affect our society?

27. Cost of Trauma Trauma is a major driver of medical illness, including cardiac disease and cancer Addressing trauma can positively impact the physical, behavioral, social and economic health of Ohio and Ohioans 27

28. What can be done about ACEs? These wide-ranging health and social consequences underscore the importance of preventing ACEs before they happen Safe, stable and nurturing relationships can have a positive impact on a broad range of health problems and on the development of skills that will help children reach their full potential Strategies that help address the needs that children and families have include: 28 Home visiting to pregnant women and families with newborns Parenting Training Programs Intimate partner violence prevention Social support for parents Parent support programs for teens And teen pregnancy prevention programs Sufficient income support for lower income families Early childhood programs and environments Mental illness and substance abuse treatment

29. What is Trauma Informed? A program, organization or system that is trauma- informed: Realizes the widespread prevalence and impact of trauma Understands potential paths for healing Recognizes the signs and symptoms of trauma and how trauma affects all people in the organization, including: Patients Families Staff Others involved with the system Responds by fully integrating knowledge about trauma into practices, policies, procedures, and environment. 29

30. Key Principles of Trauma-Informed Care 30 Safety Trustworthiness and transparency Collaboration and mutuality Empowerment Voice and choice Peer support and mutual self-help Cultural, historical and gender issues Resiliency and strength-based

31. Principle 1: Safety Slide 31 Throughout the organization, staff and the people they serve, whether children or adults, feel physically and psychologically safe. Do personal interactions promote a sense of safety? Who defines safety in the organization? Ho do people served define safety? How do staff define safety? What changes need to be made to address safety concerns? Does the organization work on risk management principles or is the organization risk averse?

32. Discussion Do staff feel safe in the organization? If not, why not? Do people served feel safe in the organization? What can be done to promote the sense of safety in both the staff and people served? Slide 32

33. Principle 2: Trustworthiness and Transparency Slide 33 Organizational operations and decisions are conducted with transparency and the goal of building and maintaining trust among clients, family members, staff, and others involved with the organization. Is the organization constantly building trust? Do people really understand their options?

34. Examples of Trustworthiness Making sure people really understand their options Being authentic Directly addressing limits to confidentiality Slide 34

35. Principle 3: Peer Support Slide 35 Peer support and mutual self-help are key vehicles for establishing safety and hope, building trust, enhancing collaboration, serving as models of recovery and healing, and maximizing a sense of empowerment. Does the organization practice principles of peer support? Is there peer support for staff? Are the staff prepared to accept peer supporters?

36. Examples of Peer Support Peer support = A flexible approach to building mutual, healing relationships among equals, based on core values and principles: Voluntary Non- judgmental RespectfulReciprocalEmpathetic Slide 36

37. Discussion Does your organization offer access to peer support for the people who use your services? If so, how? Does your organization offer peer support for staff? What barriers are there to implementing peer support in your organization? Slide 37

38. Principle 4: Collaboration and Mutuality Slide 38 Partnering and leveling of power differences between staff and clients and among organizational staff from direct care to administrators; demonstrates that healing happens in relationships, and in the meaningful sharing of power and decision-making. Everyone has a role to play; one does not have to be a therapist to be therapeutic. Is there true partnership between people served and staff and between management and staff?

39. Examples of Collaboration “There are no static roles of ‘helper’ and ‘helpee’—reciprocity is the key to building natural community connections.”—Shery Mead Hospital abolished special parking privileges and opened the “Doctor’s Only” lounge to others Models of self-directed recovery where professionals facilitate but do not direct Direct care staff and residents in a forensic facility are involved in every task force and committee and are recognized for their valuable input Slide 39

40. Principle 5: Empowerment, Voice, and Choice Slide 40 Individuals’ strengths and experiences are recognized and built upon; the experience of having a voice and choice is validated and new skills developed. The organization fosters a belief in resilience. Clients are supported in developing self-advocacy skill and self-empowerment. Does the organization really understand the person not just understand symptoms and behaviors? What forums exist for staff voice to be heard and is there authentic input by staff into decision that affect their practice? How are successes celebrated in the organization?

41. Principle 6: Cultural, Historical, and Gender Issues Slide 41 The organization actively moves past cultural stereotypes and biases, offers gender-responsive services, leverages the healing value of traditional cultural connections, and recognizes and addresses historical trauma.

42. Trauma-Informed Care (TIC) Promotes Cultural Change 42 “What’s wrong with you?” “What has happened to you?”

43. Outcomes with TIC Improved quality of care and impact of care Improved safety for patients and staff Decreased utilization of seclusion and restraint Fewer no-shows Improved patient engagement Improved patient satisfaction Improved staff satisfaction Decreased “burnout” and staff turnover 43

44. Ohio’s Trauma-Informed Care (TIC) Initiative Vision: To advance Trauma-Informed Care in Ohio Mission: To expand opportunities for Ohioans to receive trauma- informed interventions by enhancing efforts for practitioners, facilities, and agencies to become competent in trauma- informed practices 44

45. Regional Collaboratives Progressively transmit TIC and increase expertise within regions Facilitate cultural change within organizations, addressing gaps and barriers and taking effective steps based on the science of implementation Topical workgroups (prevention, DD, child, older adult, etc.) Department(s) continue to support, facilitate, communicate 45 Ohio’s Trauma-Informed Care (TIC) Initiative

46. Trauma-Informed Care Regional Collaboratives

47. SAMHSA’s Definition of Recovery Recovery is a process of change through which individuals improve their health and wellness, live a self-directed life, and strive to reach their full potential. Slide 47

48. Recovery Allow patients to save themselves Remember what your role is Not a savior or rescuer Facilitator, support Help reinstate renewed control The more helpless, dependent and incompetent the patient feels, the worse the symptoms become

49. So what do we do...? Slide 49 NOSOMEWHAT YES KNOWLEDGE I know that violence and traumatic experiences can often lead to disorders such as chronic health conditions, over-eating, STI/HIV/AIDS, etc. I can recognize the signs of trauma, even in a survivor doesn’t tell me. I can explain to a survivor what trauma is, including effects of an event. COMFORT LEVEL I can be comfortable asking about traumatic experiences and hearing the responses. I am capable of actively listening to difficult feelings and emotions that may arise. I am comfortable talking about my own traumatic experiences. I can establish trust and safety as a priority in my work with people.

50. So what do we do...? Slide 50 NOSOMEWHAT YES RELATIONSHIP BUILDING I can establish trust and safety as a priority in my work with people. I try to establish a genuine, caring connection with survivors. I can establish trust and safety as a priority in my work with people. RESPONDING TO SHARING ABOUT EVENTS I acknowledge to the survivor the difficulties and courage involved in talking about their traumas. I encourage the survivor to only share what they are comfortable with sharing. I feel comfortable discussing safety strategies with survivors of different forms of abuse. I am familiar with and have a plan to cope with secondary trauma.

51. So what do we do...? Slide 51 NOSOMEWHAT YES COPING I acknowledge the link between trauma, developmental disabilities, mental heath and addiction. I ask how a survivor copes with difficult behaviors that may result from trauma experiences. I ask survivors how they cope with difficult feelings surrounding trauma. I know that protective strategies used by survivors can be misinterpreted. ATTITUDES AND BELIEFS I believe trauma survivors are resilient and able to recover. I believe I can affect positive change.

52. So what do we do...? Slide 52 NOSOMEWHAT YES EMPOWERMENT, VOICE AND CHOICE I focus on the survivor’s strengths and resources. I try to instill a sense of hope and change. I work in collaboration with the survivor, supporting them in the decisions they make about their lives and the services that can be accessed or provided. RESOURCES I am familiar with community resources that can assist survivors (e.g. domestic violence shelters, child advocacy centers, Veterans Administration, Area Agencies on Aging). I refer trauma survivors to trauma-recovery and treatment services in the community. I understand hoe some interventions (i.e. couples counseling, mediation, family counseling) can increase the risk to some survivors of retraumatization.

53. So what do we do...? Slide 53 NOSOMEWHAT YES SELF-CARE I am aware of the ways in which my work with traumatized people impacts me in my professional and personal life. I can recognize the signs and symptoms of trauma in myself and my co-workers, I know ways to address my own trauma and secondary trauma I may experience in working with others,

54. What we CAN do... Slide 54 Treat everyone with universal precaution: Assume that the person has experienced trauma even if you don’t know their personal history. Create a welcoming environment that promotes a feeling of safety and non-violence – pay attention to physical space, tone of voice, loudness of music or side conversations and eliminate anything that could be intimidating or anxiety provoking. Be very aware of personal space. Realize that some painful memories may be triggered by touching, hugging, behaving authoritatively, standing over the person or blocking their exit in a closed space, etc.

55. What we CAN do... Slide 55 Recognize that certain practices (e.g., seclusion and restraint) may create trauma and trigger traumatic memories. Make a commitment to non-violence in words, actions and policy/practices. Support meaningful power-sharing and decision-making – Voice and Choice! Use tools/approaches that help calm fear/anxiety/anger/defensiveness as a preventative and healing method rather than engaging in confrontational approaches that focus on coercion or control of external behavior.

56. What we CAN do... Slide 56 Understand that troubling behaviors that we may find uncomfortable likely helped the person cope/survive under extreme circumstances. Seek to understand their experiences and identify a path to healing. Show genuine concern and be sensitive to physical or intellectual barriers, gender and cultural issues. Help link the person with trauma responsive services and ensure continuity of care between organizations and across systems. Ask “What happened to you?” instead of “What’s wrong with you?”

57. TIC: Why is this important? TIC: Why is this important? 57

58. TIC: Why is this important? “What Happened to You?” 58

60. 60 Dr. Mark Hurst, M.D., FAPA Medical Director, OhioMHAS 30 East Broad Street, 36 th Floor, Columbus, OH 43215 (614) 466-6890 Mark.Hurst@mha.ohio.gov Tina Evans Regional Liaison Team Lead, Division of Policy & Strategic Direction Ohio Department of DD 30 E. Broad St. 12 th Floor Columbus, Ohio 43215 614.752.9028 tina.evans@dodd.ohio.gov Kim Kehl TIC Project Coordinator, Office of the Medical Director OhioMHAS 30 East Broad Street, 36 th Floor, Columbus., OH 43215 (614) 644-8442 Kim.kehl@mha.ohio.gov Sondra Williams Adult with Autism and PTSD Survivor’s Voice/Advocate Sondra Williams hfa2@yahoo.com