1. HELLO TO ADULTS Presented by Joanne Burke (RGN RSCN) (ANP for Haemophilia) 11 th December 2015

2. PRESENTATION TITLE/DATE CAN GO HERE

3. Presentation Title/Date Can Go Here Transition at OHTC  Comprehensive Care Centre  1200 patients with bleeding disorders  Haemophilia, VWD, Rare Disorders  Children & Adults together at OHTC until June 2015  No formal transition process  June 2015 commenced RSG & Hello Programme

4. MULTIDISCIPLINARY TEAM:  3 Adut Consultants  2 Paediatric Consultants  1 Haematology SpR (on rotation)  1 FY2 (on rotation)  2.8 Adult nurse specialists  2 Children’s nurse specialists  1 Research Nurses  1 adult physio  0.6 children’s physio  0.8 Nursing Assistant  Lab Staff

5. Staff Education Programme  Presentation to adult & children’s teams – Transition & RSG  Presentation to other nurses in the Trust  Adolescent Health Programme – RCPCH e learning www.e-lfh.org.uk/programmes/adolescent-health/more-information  Dr. Deborah Christie - Consultant Clinical Psychologist in Paediatric & adolescent health Presentation Title/Date Can Go Here

6. HELLO TO ADULTS QUESTIONNAIRE

7. Parents Hello to Adults Questionnaire

8. Progress Notes

9.  Age 18 yrs. 7mnths  fXIII deficiency – diagnosed age 1/12  Lives with parents and younger brother  Treated monthly with fXIII concentrate  Transferred from DGH  Unable to self treat Presentation Title/Date Can Go Here Case Study 1

10. CASE STUDY 1 QUESTIONNAIRE

11. CASE STUDY 1 PARENT QUESTIONNAIRE

12. PROGRESS CASE STUDY 1

13.  Age 20 yrs 6 mnths  Severe Haemophilia A – strong family history  Lives with girlfriend & her family  Self treats with fVIII concentrate daily  Care always at OHTC Case Study 2

14. CASE STUDY 2 QUESTIONNAIRE

15. PROGRESS CASE STUDY 2

16. PATIENT EDUCATION http://hemophilia.aboutkidshealth.ca/En/Pages/default.aspx

17. Keeping in Touch  Open access  Haemtrack  Telephone follow up between clinic appts.

18. Presentation Title/Date Can Go Here QUESTIONS?