1. Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport Andrea Szentesi on behalf of the Hungarian Pancreatic Study Group SZEGED, HUNGARY HPSG Registry for Pancreatic Patients 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups

2. Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport HPSG Registry for Pancreatic Patients 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups www.pancreas.hu History Centers Permissions Forms Login Create new account EASY PINEAPPLE APPLE PREPAST

3. Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport HPSG Registry for Pancreatic Patients 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups AP CP PC AIP Autoimmune Pancreatitis Acute Pancreatitis Chronic Pancreatitis Pancreatic Cancer General Registry Prospective studies

4. Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport HPSG Registry for Pancreatic Patients 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups www.pancreas.hu

5. Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport HPSG Registry for Pancreatic Patients 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups Signed Letter of Intent to Join the Registry sent to hpsg.info@gmail.comhpsg.info@gmail.com Registration on the website

6. Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport HPSG Registry for Pancreatic Patients 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups Collecting Informed Consent Form EDTA tubes Coding Doctor code + consecutive numbers (e.g.: AB001, AB002,…) Only the code on the tubes, no personal data! Storing -20⁰C Delivery HPSG covers Temperature guaranteed Prior notice required

7. Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport HPSG Registry for Pancreatic Patients 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups Sources of Data: Patient – patient questionnaires Details of medical history Symptoms Electronic Medical Records Laboratory parameters Imaging examinations Interventions Therapy information Conservative terapy

8. Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport HPSG Registry for Pancreatic Patients 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups 1. administrator or doctor 2. local doctor 4. principal investigator approved rejected with a note Important! Checking, completing, correcting Incomplete from will be excluded! 3. central admin control

9. Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport HPSG Registry for Pancreatic Patients 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups Person who uploads data: access to own data Local investigator: access to data of own institute Principal investigator: access to AP or CP data (control) Administrator: access to all data (control) To receive a higher level access then the one rendered to the user, a research plan should be proposed to the Hungarian Pancreatic Study Group. The proposal will be evaluated and the access will be decided. Any results based on the data of the HPSG Registry for Pancreatic Patients, can only be published with the consent of the HPSG.

10. Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport HPSG Registry for Pancreatic Patients 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups All forms and documents are available on our website. Please turn to the team in Szeged should you have any questions or problems. Réka Baracsi Imre Ignáth Péter Nagy Andrea Szentesi Contact: szentesiai@gmail.com +36 70 293 75 37

11. Hungarian Pancreatic Study Group – Magyar Hasnyálmirigy Munkacsoport HPSG Registry for Pancreatic Patients 4 th Conference of the Hungarian & 2 nd Conference of the Eastern and Central European Pancreatic Study Groups THE HUNGARIAN PANCREATIC STUDY GROUP IS COMMITTED TO IMPROVING THE LIFE OF PATIENTS SUFFERING FROM PANCREATIC DISEASES! www.pancreas.hu