1. Dementia Friendly America
National Council Meeting
June 3, 2015

2. The Dementia Friendly America Initiative
Initiative Objective
Foster dementia friendly communities across the US
Desired Outcomes
Community and system capacity that enhances quality of life and positive outcomes for people living with dementia and their care partners
Indicators
Increased quality of life for PwDs and Care partners via agreed upon indicators
Increased community awareness of dementia
Increased dementia friendly business and financial practices
Increased access to community life and meaningful engagement through dementia friendly services and supports
Increased rates of detection/diagnosis and participation in clinical trials
Increased rates of advance planning
Reduced fraud and abuse
Do you see yourself here/?

3. DFAi Hypothesis
Positive outcomes for people living with dementia and care partners Outcomes
Tools have desired impact at community and system levels
Meaningful uptake of community and system resources and tools
Availability of DFAi community and system resources and tools

4. Web-Based Resource

5. Community Toolkit
Convene key community leaders and members to form an Action Team.
Assess current strengths and gaps within the community.
Analyze findings to understand your community’s needs and develop a plan to take action.
ACT Together to pursue priority goals that foster community readiness for dementia.

6. Desired Impact Community Capability:
Adoption of dementia friendly practices providing:
Increased community awareness
Increased services and support
Increased dementia friendly business practices
Increased dementia friendly transportation, public spaces and housing
Reduced fraud and abuse
Delayed institutionalization
Increased opportunity for meaningful engagement in community, e.g., faith, art, volunteerism
Increased advance planning
Increased ability to finance LTSS needs
Person with Dementia—Quality of Life, with emphasis on subjective measures of well-being, happiness and engagement, versus functional disability
Care Partner Efficacy—including confidence and being equipped as well as burden/depression
Care Partner Support and Family Health –including social engagement and networks of support
System Capability:
Adoption of optimal dementia care providing:
Timely disease identification
Assessment and responsive care plan
Identification/inclusion of a care partner
Disease management
Linkage/ Integration with Community Supports
Increased participation in clinical trials
Reduced crisis care and utilization

7. Supporting Structure

8. 2015 Timeline and Key Dates June ‘15 Sept ‘15 Dec ‘15 Jan ‘16 Mar ‘16
Resource Enhancement & Portal Development
Convene Community Sector Groups, Revise Sector Guides
Automate Community Tool Kit & Develop Portal
PR & Communications
Planning: Announcement, Roll Out & General Communications
Initiative Announcement
Dementia Friends Development
Pilot Communities
Invite Pilot Communities into DFAi
Convene Leaders Within Each Pilot Community
Community Planning & Resourcing
Dissemination & Technical Assistance
Dissemination Planning Through Pilot Communities
Technical Assistance Planning & Mapping
Train the Trainer material development & testing
Evaluation
Background Planning & Partner Development
Evaluator Selection & Design
Funding & Implementation
Structure/ Leadership
If appropriate, incorporate
If appropriate, identify CEO

9. Development Organizing Structure
Charged with: 1) General oversight, framing, branding, communications, and strategy;
2) Implementation team, including convening, facilitating, synthesizing, communicating and tracking work group progress
Charged with enriching sector based resources categorized under WHO age-friendly criteria (e.g., faith, business, public spaces, transportation, housing, clinical etc.)
Council, Executive Comm. and Implementation Team (includes people with dementia)
Sector specific-resource work groups
(7)
Cultural capability work group
Portal architecture work group
Initiators work group
Pilot Community Development
Charged with identifying technical assistance vehicles and connecting community partners in pilots)
Charged with adding and adjusting resources to ensure cultural inclusiveness
How are we going to get cultural capability right/ Who can help in this room lead this work?
Charged with identifying sources for DFC implementation (e.g., portal implementation, technical assistance and community piloting)
Charged with creating, automating and enhancing web-based resource

10. Resource Enhancement Work Groups Meaningful Engagement
Sector-Specific Resource Work Groups
Resource Enhancement Work Groups
Provider Systems
Legal / Financial
Retail / Business
Employers
Faith
Government/ Planning
Meaningful Engagement
Working Group Process
Initial review of materials
Refinement
Approval
Inclusion on resource portal

11. Potential DFAi Pilot Communities
Boston, MA
Apple Valley, MN
Philadelphia, PA
Pittsburgh, PA
San Francisco, CA
Chicago, IL
Baltimore, MD
Indianapolis, IN
Montgomery County, MD
Prince Georges County, MD
Las Vegas, NV
Knoxville, TN
Santa Clara County, CA
Denver, CO
St. Louis, MO
Nashville, TN
Atlanta, GA
Phoenix, AZ
San Antonio, TX

12. Establishing Pilot Communities
Pilot Community Development Steps
Identify Champions
Assure Connections Between Champion and Clinical, Community, and Public Sector Partners
Readiness and Commitment Check
Connect Community With Local Technical Assistance Support and Establish Local Funding Partner
Assist in Securing Funding and MOU
Implement Community Tool Kit Process

13. * Does not include dementia friends program
Development Budget
OPERATING EXPENSES*:
Resource Development, Technical Assistance Plan and Training, Pilot Community Development
$455,000.00
Website Development/Toolkit Automation
$150,000
Communications and Roll Out
$250,000
Fiscal Sponsor
$35,000
Evaluation
TOTAL
$1,140,000
* Does not include dementia friends program

14. B) TA model w/ Self Funding
Revised Community Budget
Approach
A) Seed Funding Model
B) TA model w/ Self Funding
15 communities
15+ Communities
OPERATING EXPENSES:
Technical Assistance Delivery
$75,000.00
$10,000 each
Community Engagement and Seeding
$300,000.00
Self-funded
Grant Administration
$30,000.00
$0.00
TOTAL
$405,000
$150,000

15. Announcement & Awareness
DFAi Implementation Scenarios
Scenario
Visual Brand
Website
Announcement & Awareness
Technical Assistance
Cost
The Big League
Top tier
Automated tools
Big Splash
DFAi funds through local agencies
$2.4 million
Minor League
Some automated tools
Small Splash
$1.2 million
Rec League
No automation
Partner Vehicles
Pilots fund or free video is offered
$800K
Backyard Ball
Limited, ACT version
Remote (webinars)
$600K

16. Announcement & Awareness
“Backyard Ball ” Communications
Scenario
Visual Brand
Website
Announcement & Awareness
Backyard Ball
Dementia Friendly America Community Capacity Website
ACT version with little DFAi customization
National announcement strategy and playbook developed
Pilot community framework; local communities execute shared strategy
Limited collateral development and social media content created for announcement and shared by partner vehicles
Metrics: Number of communities

17. Announcement & Awareness
“Rec League” Communications
Scenario
Visual Brand
Website
Announcement & Awareness
Rec League
Key message development
Dementia Friendly America Community Capacity Website
No automation
National announcement strategy with some execution support and counsel
Pilot community playbook developed; local communities execute shared strategy
Collateral development
Social media content created and shared by partner vehicles
Metrics: Share of voice analysis and number of communities

18. Announcement & Awareness
“Minor League” Communications
Scenario
Visual Brand
Website
Announcement & Awareness
Minor League
Key Message Platform Development
Dementia Friendly America Community Capacity Website
Integrated digital strategy
Some automated tools
Dementia Friends website architecture
National announcement strategy and execution
Pilot community playbook developed; local communities execute shared strategy
Collateral development
Social media strategy and execution support
Ongoing media support for key national triggers
Metrics: share of voice, number of communities
Metrics: Share of voice analysis and number of communities

19. Announcement & Awareness
“The Big League” Communications
Scenario
Visual Brand
Websites
Announcement & Awareness
The Big League
Key Message Platform Development
Dementia Friendly America Community Capacity Website
Fully automated tools
Dementia Friends America Website
Integrated digital strategy
Professionally acted and filmed videos
National announcement strategy, planning, content development and execution
Pilot community announcement strategy, planning, content development and execution
Collateral development
Social media strategy and execution
Ongoing media support
Celebrity plan Regional ambassador program and plan
Grassroots program ideation and some support
Metrics: Gallup Poll*, stakeholder survey, share of voice analysis, number of communities

20. Next Steps Planning Questions
Funding: Given our current funding gap, what scenario do we aim for and how do we move forward?
Pilot Communities: How can we collaborate to accelerate contact with and development of pilot communities?
Cultural Capability: How we should we ensure we achieve cultural capability in our work?
Evaluation: How might we move forward to support an evaluation effort?

21. Dementia Friends Online
Scotland Program URL

22. Recommended Announcement Strategy
Possibly use July 2015 White House Conference on Aging to:
Share intention to expand MN pilot program nationally to key stakeholder audiences
Develop partnerships and create interest
Q3 initiative announcement and pilot communities launch:
National press event in DC with key national partners
Local press events with pilot communities
Benefits:
All assets and select pilot communities are live
Ability to use and repurpose qualitative and quantitative data
Use natural media hook that the first of the Baby Boomers will be 70 in 2016
Four announcement implementation scenarios to consider

23. Announcement Planning and Considerations
Additional Activities
Toolkit development
Message development
Framework development
DFAi social media strategy
Celebrity/key influencer campaigns
Metrics
DFA Partner Roles
Announce at forums/annual meetings
Partner engagement
Communications support
Media relations
Digital support
Social media
How could DFA partners help be the megaphone for this work?

24. To have without possessing Do without claiming Lead without controlling This is mysterious power Lao Tzu, Tao Te Ching
How could DFA partners help be the megaphone for this work?