1. Farr Institute (Scotland)
Dr Stephen Pavis

2. Health Informatics Research Centres become the Farr Institute UK
MRC funded 4 HIRCs across the UK
London, Manchester, Dundee and Swansea (Dundee coordinating)
Primarily around empirical research
In Scotland 6 Universities plus NSS in partnership
Farr UK is a virtual institute joining the HIRCs
MRC funded 4 centres – but this was really about empirical research. Farr joins these 4 existing centres into a new UK wide virtual institute.

3. Farr UK Objectives
E-Infrastructure: To establish an outstanding UK e-infrastructure across the Centres.
Research: To enhance research productivity across the UK by widening access to well-described datasets through a prominent UK-wide portal, bringing new datasets to the research community and enhancing communication.
Capacity: To develop a UK-wide co-ordinated offering for training and capacity development to address the acute skills shortage in health informatics research.
Public engagement: To engage the public and patients across the UK and locally, in a novel range of activities to enhance public trust in the use of health records for research.

4. How the capital investment supports the objectives
There are five core components of the institute for capital investments. Each of these will take place in the 4 UK sites
Physical centres
Safe havens
e-infrastructure
New data access
Communication

6. Farr Institute: Scotland
Grant formally awarded to Dundee University by MRC circa £5m (capital) Scottish Government supplement of £2m NSS supplement of £0.5m SG and NSS monies held in an Escrow account and only spent with partners agreement

7. What is the big idea? To place Scotland as:
a global leader in health informatics research
improve the health of population
Drivers are both economic and health
Capitalisation on existing resources and expertise
Culture shift via sharing space, forming relationships, ‘breathing the same air’

8. Farr Institute, Scotland
Two sites:
Refurbishment of building at Dundee Medical School, Ninewells Hospital
Lease of new building in Edinburgh Bio- Quarter – lease being negotiated for 7 years (5 yrs MRC plus 2 yrs Scottish Enterprise).
Edinburgh building can house up to 70 people

13. Who will be in the Edinburgh building?
4/5 groups are proposed:
Informatics experts (Ed Uni)
Health related research academics (across institutions)
NHS data experts (eDRIS staff)
Over time Industry
DSLS and/or ADRC may co-locate

14. Governance Budget is held by Dundee University
Executive Group to be chaired by Marion Bain and Andrew Morris
Specialist Working Groups for four work streams
SP as Programme Director – reporting to the Executive Group and Principal Grantholder

15. Farr Institute, Scotland
Specialist Working Group (SWG):
Estates (AM & DR)
IT and telecommunications (JM & AR)
Datasets (GP, Imaging and Labs) and IG (LR & CP)
Communications, stakeholder engagement and HR (KM &SH)

16. Executive Governance Group
MRC
HIRAG
PI, AM
Executive Governance Group
Programme director
IT & telecoms
Engage. Comms & HR
Estates
Datasets and IG

17. Specialist working groups terms of reference
Groups are about planning and delivery up to March 14.
thinking through what needs to be done
submitting delivery proposal to Exec Group
complete work plan by March 14 (Estates & IT)
managing work plan up to March 14 (Datasets/IG, & Comms). Work will continue post March 14
Draft terms of reference provided. These need to be reviewed, amended and agreed by working groups
A HIRAG/Farr joint workshop will review the overall plan in Nov 13

18. Inter-dependencies between SWGs
We need to ensure that SWGs stay joined up eg:
Datasets, IG and IT
Estates and IT/telecoms
Stakeholder engagement and all other groups

19. Budgets
Each group will have an indicative budget for planning purposes
Where there are dependencies between groups it makes sense for the chairs to discuss and agree proposals
Executive Group will review proposed spends, so as to ensure that the separate plans form a coherent whole

20. Project management support for the SWGs
NSS will provide project management to the working groups, covering such areas as:
work stream in / out scope (PID)
timeline and dependency planning
risk and issue registers
drafting of progress reports to Executive Group
minutes of meetings and action logs
Dedicated Project Manager support the 4 specialist working groups

21. 1
Publish PID to
Executive Governance Group (EGG) &
Specialist Working Group (SWG) Chairs
EGG 23/08
EGG 23/10
EGG XX/12
EGG XX/02
EGG XX/04 5
SWG Alignment Event 2
Launch Event 03/07
HIRAG / Farr Workshop 06/11 3
Establish EGG &
Sign off ToR 6
Establish agreed Governance Operating Models for the Farr Institute 7
Establish Framework & Governance for a Federated Network of Safe Havens 4
Sign off PID
Estates SWG
Estates SWG
Estates SWG
Estates SWG
Estates SWG
Estates SWG
Estates SWG
Estates SWG
Estates SWG
Estates SWG
Estates SWG 1
Establish SWG & sign off ToR 6
Dundee Refurbishment complete 7
Edinburgh Bio-Quarter complete 2
Plan submission to EGG 3
SWG resources identified 4
Signed Lease Agreement 5
Establish Office fitment
IT SWG
IT SWG
IT SWG
IT SWG
IT SWG
IT SWG
IT SWG
IT SWG
IT SWG
IT SWG
IT SWG
IT SWG 1
Establish SWG & sign off ToR 5
Establish power & telecoms requirements 6
Establish IT infrastructure requirements 2
Submit Plan to EGG 3
SWG resources identified & secured 4
Define Inter-operability for eInfrastructure
Data & IG SWG
Data & IG SWG
Data & IG SWG
Data & IG SWG
Data & IG SWG
Data & IG SWG
Data & IG SWG
Data & IG SWG
Data & IG SWG
Data & IG SWG
Data & IG SWG 1
Establish SWG & sign off ToR 2
Submit Plan to EGG 3
SWG resources identified & secured 4
Prioritise Initial Datasets
Comm SE & HR SWG
Comm SE & HR SWG
Comm SE & HR SWG
Comm SE & HR SWG
Comm SE & HR SWG
Comm SE &
HR SWG
Comm SE & HR SWG
Comm SE & HR SWG
Comm SE & HR SWG
Comm SE & HR SWG
Comm SE & HR SWG 1
Establish SWG & sign off ToR 2
Submit Plan to EGG 7
Dundee Building staff on site 8
Edinburgh Building staff on site 3
SWG resources identified & secured 6
Establish HR formal processes to support moves 4
Communication Strategy & Plan sign off 5
In Scope Staff identified

22. Contacts
Steve P,
Kristy Duff
Colette MacKenzie,