1. Being part of the conversation: privacy and disability Katrine Evans 6 December 2010

2. Privacy supports partnerships Partnerships between: providers and clients clients and whanau/caregivers providers and whanau/caregivers.

3. “Health information” Not just health information as such – also information about disabilities and disability services And a “health agency” includes an agency providing disability services Health Information Privacy Code, clause 4.

4. Privacy is an important right in your toolbox But what does “privacy” mean? Focus of HIPC – protection of information about people (Code of Consumer Rights - physical privacy)

6. Managing information well = partnership. Purpose Explanation Trust “PET” also = “Privacy Enhancing Technology” …

7. Purpose is often not a problem But worth checking Health Information Privacy Code, rule 1.

9. Explanation and involvement is more usually the missing factor Case study: What do fire wardens need to know? council flats; information released to fire wardens about residents’ disabilities fire wardens were just residents

11. Transparency leads to trust. notification when collecting – what is being collected and why, and where’s it going giving access to personal information formally noting views if there is a difference in opinion

13. Some other points to watch. storage and security accuracy

14. Contact:. Phone free: 0800 803 909 (general advice about Act and Code; info about making a complaint) Email: enquiries@privacy.org.nzenquiries@privacy.org.nz Website: www.privacy.org.nzwww.privacy.org.nz katrine.evans@privacy.org.nz