1. CAB Steering Group Feedback Mark McPherson

2. What, why and who…  What: A representative group of people from within the CAB with an interest in the future of this group  Why: To increase the number of people involved in preparing this meeting, reducing work for some and adding difference perspectives  Who: At the moment we are: Ben Cromarty, Robert James, Carmen Tarrades, Brian West….also with us in spirit were Badru Male and Fiona Pettitt  What: A representative group of people from within the CAB with an interest in the future of this group  Why: To increase the number of people involved in preparing this meeting, reducing work for some and adding difference perspectives  Who: At the moment we are: Ben Cromarty, Robert James, Carmen Tarrades, Brian West….also with us in spirit were Badru Male and Fiona Pettitt

3. What did we do?  Looked at what the CAB has done to date  Discussed its strengths  Looked for opportunities  Planned this meeting  Looked at what the CAB has done to date  Discussed its strengths  Looked for opportunities  Planned this meeting

4. What do we want to do today  Feedback what we did  Get ideas for future events  Get ideas about the future role  Get ideas about how the group should be run  Feedback what we did  Get ideas for future events  Get ideas about the future role  Get ideas about how the group should be run

5. Aims of the UK CAB  To provide a specialist treatment training programme  3 speakers and a network sessions  Speakers include researchers and companies as well as group members  To strengthen the network of treatment workers and advocates  Discussing issues and advances  Community representation (eg BHIVA guidelines)  To provide a specialist treatment training programme  3 speakers and a network sessions  Speakers include researchers and companies as well as group members  To strengthen the network of treatment workers and advocates  Discussing issues and advances  Community representation (eg BHIVA guidelines)

6. What has the CAB been up to?  Established in 2002  This is the 15th meeting  Past meetings have included: Trail Design; Resistance and Salvage Therapy; Pregnancy, Fertility and Sperm Washing; Access to Services for Refugees and Asylum Seekers; Statistics; Immunology and Children  They have been delivered in the style of meetings and training events  We have an active web based discussions group  Established in 2002  This is the 15th meeting  Past meetings have included: Trail Design; Resistance and Salvage Therapy; Pregnancy, Fertility and Sperm Washing; Access to Services for Refugees and Asylum Seekers; Statistics; Immunology and Children  They have been delivered in the style of meetings and training events  We have an active web based discussions group

7. How do we compare?  ECAB - more focused on drug trial design and linkage to the pharmaceutical industry  French and German CABs - more activist based in a traditional sense involved with demonstrations etc.  ECAB - more focused on drug trial design and linkage to the pharmaceutical industry  French and German CABs - more activist based in a traditional sense involved with demonstrations etc.

8. Strengths  Diverse and Representative  Delivers accessible information - without oversimplifying it.  Provides contact nationally (often where treatment maybe sub-optimal)  Affords community involvement in other policy forums  Diverse and Representative  Delivers accessible information - without oversimplifying it.  Provides contact nationally (often where treatment maybe sub-optimal)  Affords community involvement in other policy forums

9. Opportunities  Increase involvement in trials  Seek greater representation (pro-actively seeking key players to attend)  Create clearer policy lines and actions based on e-mail discussion  Be pro-active in the development of patient involvement across all Strategic Health Authority Regions  Take a view and lobby on issues regarding standard of care delivery as well as treatment efficacy  Increase involvement in trials  Seek greater representation (pro-actively seeking key players to attend)  Create clearer policy lines and actions based on e-mail discussion  Be pro-active in the development of patient involvement across all Strategic Health Authority Regions  Take a view and lobby on issues regarding standard of care delivery as well as treatment efficacy

10. What we will do next?  Have another steering group meeting after this one to plan the next CAB  Plan how to take forward your feedback  Look at how the next steering group should be formed  Have another steering group meeting after this one to plan the next CAB  Plan how to take forward your feedback  Look at how the next steering group should be formed

11. Key Questions  Have you ideas for future events?  Have you ideas about the future role?  Have you ideas about how the group should be run?  Have you ideas for future events?  Have you ideas about the future role?  Have you ideas about how the group should be run?