1. Projects of National Significance Ophelia McLain Phone: 202-690-7025 E-mail: ophelia.mclain@acf.hhs.gov ophelia.mclain@acf.hhs.gov

2. About PNS Projects of National Significance (PNS) are short-term projects (one to five years) that address the most pressing issues affecting people with developmental disabilities and their families. Projects of National Significance (PNS) are short-term projects (one to five years) that address the most pressing issues affecting people with developmental disabilities and their families.

3. Projects of National Significance 4 Data Collection Projects 4 Data Collection Projects –2 UCEDDs (MA, MN) 17 Family Support 360 Centers 17 Family Support 360 Centers –7 FS360 - 2 UCEDDs (MS, VA) –10 FS360 Military - 6 UCEDDs (FL, GU, MS, NC, TX, UT) 12 Special Initiatives 12 Special Initiatives –8 UCEDDs (CA, DE, HI, MI, NC, NM, UT, VT) 21 Youth Information Centers 21 Youth Information Centers –8 UCEDDs (HI, MO, MS, MT, NC, NH, UT, VA)

4. Duration of Current Projects Data Collection: 2007 – 2011 Data Collection: 2007 – 2011 Family Support 360: 2009 – 2014 Family Support 360: 2009 – 2014 Family Support 360 for Military Families: 2008 – 2013; 2009 – 2014 Family Support 360 for Military Families: 2008 – 2013; 2009 – 2014 Family Support 360 Special Initiatives: 2009 - 2010 Family Support 360 Special Initiatives: 2009 - 2010 Youth Information Centers: 2007 - 2010 Youth Information Centers: 2007 - 2010

5. Data Collection Analysis of trends and innovations in Medicaid spending Analysis of trends and innovations in Medicaid spending Research on the nature of day and employment services for individuals with developmental disabilities Research on the nature of day and employment services for individuals with developmental disabilities Examination and study of housing related activities Examination and study of housing related activities Support of the web-based Medicaid Reference Desk Support of the web-based Medicaid Reference Desk

6. Family Support 360 Annually, each grant is to provide family support to families of individuals with developmental disabilities through a one-stop Annually, each grant is to provide family support to families of individuals with developmental disabilities through a one-stop A one-stop center serves as a centralized location to access a wide range of services A one-stop center serves as a centralized location to access a wide range of services

7. Family Support 360 for Military Families Military families usually navigate two systems – civilian and military. Military families usually navigate two systems – civilian and military. Each project will assist 20 families in year one, and 40 families each year in the second through fifth years. Each project will assist 20 families in year one, and 40 families each year in the second through fifth years.

8. Youth Information Centers Serve youth (ages 13 – 17) and emerging leaders (ages 18 – 30) with developmental disabilities. Serve youth (ages 13 – 17) and emerging leaders (ages 18 – 30) with developmental disabilities. Provide information, training and experiences to assist them with transition, to become leaders and to serve as role models for other young people Provide information, training and experiences to assist them with transition, to become leaders and to serve as role models for other young people Two national organizations, all others are locally based Two national organizations, all others are locally based

9. Family Support Clearinghouse The Family Support Center on Disabilities: Knowledge & Involvement Network was funded in 2008. The Family Support Center on Disabilities: Knowledge & Involvement Network was funded in 2008. It offers a centralized resource to individuals with disabilities, their families and the public on the full range of options available to them. It offers a centralized resource to individuals with disabilities, their families and the public on the full range of options available to them. http://www.familysupportclearinghouse.org http://www.familysupportclearinghouse.org http://www.familysupportclearinghouse.org

10. Websites www.statedata.info www.statedata.info www.statedata.info http://www.cu.edu/ColemanInstitute/s tateofthestates/index.html http://www.cu.edu/ColemanInstitute/s tateofthestates/index.html http://www.cu.edu/ColemanInstitute/s tateofthestates/index.html http://www.cu.edu/ColemanInstitute/s tateofthestates/index.html www.QualityMall.org www.QualityMall.orgQualityMall.org www.thedesk.info www.thedesk.info www.thedesk.info http://www.addfamilysupport360.org/ 3_10/index.html http://www.addfamilysupport360.org/ 3_10/index.html http://www.addfamilysupport360.org/ 3_10/index.html http://www.addfamilysupport360.org/ 3_10/index.html http://www.addyic.org http://www.addyic.org http://www.addyic.org