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The Issue of Ethics Clearance for New Knowledge Systems Dr Margaret Kumar 1
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Outline Introduction Positioning What is Ethics Issues and anomalies in relation to Ethics Applications Ethics Application Form (NEAF) and the Guidelines for Ethical Research in Australian Indigenous Studies Ethical Standards Benchmarks and complexity Profiling and diversity Linguistic and Pragmalinguistc failures Shared Knowledge Protocol Identifying, De- identifying and Coercion Conclusions Reached Future directions 2
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https://www.google.com.au/search?q=aBORIGINAL+MAPS http://www.about-australia.com/maps 3
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What is ethics? Several layers: distinguishing between right and wrong, standards of conduct on disciplines of study method, procedure, or perspective for deciding how to act and for analyzing complex problems and issues. Two trajectories: 1. promotes the aims of research which is to contribute new knowledge 2. to ensure accountability 4
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Ethical Standards Benchmarks National Ethics Application Form (NEAF) -11 sections made up of 32 pages. The 11 sections consist of Proposal description; Administrative section, Researchers and Investigators; Resources; Prior reviews; Project; Participants; Confidentiality and Privacy; Project Specific; Declarations and signatures and Attachments. National Health and Medical Research Council 2014) 5
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Ethical Standards Benchmarks Guidelines for Ethical Research in Australian Indigenous Studies.-consists of 14 principles grouped under the broad categories of rights, respect and recognition; negotiation, consultation, agreement and mutual understanding; participation, collaboration and partnership; benefits, outcomes and giving back; managing research: use, storage and access; and reporting and compliance. 6
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Issues and Anomalies in relation to Ethics Applications Complexity Shared Knowledge Protocol Identifying and de-identifying subjects Linguistic and the pragmalinguistic Giving back 7
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Future Directions Exploratory questions and directions Any questions 8
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