Presentation is loading. Please wait.

Presentation is loading. Please wait.

Collaborative Patient-Centered Research to Reduce Health Disparities: The Health Within Reach Project Tung Nguyen, MD, Division of General Internal Medicine,

Published byProsper Roberts Modified over 8 years ago

Similar presentations

Presentation on theme: "Collaborative Patient-Centered Research to Reduce Health Disparities: The Health Within Reach Project Tung Nguyen, MD, Division of General Internal Medicine,"— Presentation transcript:

1 Collaborative Patient-Centered Research to Reduce Health Disparities: The Health Within Reach Project Tung Nguyen, MD, Division of General Internal Medicine, UCSF Mandana Khalili, MD, Division of Gastroenterology and Hepatology, UCSF/SFGH Arcadi Kolchak, San Francisco Hep B Free February 2, 2016 Patient-Centered Research Outcomes Institute (PCORI) AD-12-11-4615 Asian American Research Center on Health (ARCH)

2 Asian Americans Asian Americans fastest growing racial group 66% born outside the U.S, and 50% of foreign-born came after 1990 37% are limited English proficient: Chinese: 48%, Vietnamese: 55% 1 out of 3 San Franciscans is Asian

3 Scientific and Community Needs Hep B infection among Asian Americans ~10-15% 1/3 never had hep B screening test Few studies on Asian Americans and hepatitis C Liver cancer incidence much higher among Asian Americans compared to non-Hispanic Whites Very few clinical interventions to improve quality of care among Asian Americans

4 Health Within Reach Aims Develop interactive patient education video (Video Doctor) and Provider Alert to increase screening of hepatitis B and C in Asian American patients Evaluate the efficacy of the Video Doctor + Provider Alert intervention + Provider Panel Notification vs. Provider Panel Notification in 2 healthcare systems through provider randomized controlled trial

5 Health Within Reach Team Sites: UCSF General Medicine, SFGH General Medicine and Family Practice Team: General Medicine (Nguyen, Walsh, Goldman), Hepatology (Khalili), Psychology (Tsoh), Community (SF Hep B Free Exec Director) Stakeholders: Asian American Network for Cancer Awareness, Research, and Training (AANCART); Patient Advisory Councils, Vietnamese Community Advisory Board Research Associates : Chinese-Vietnamese (Wong), Chinese (Lau, Chow), Vietnamese (Lam, Bui)

6 How/Why Was the Team Formed? SF Hep B Free Perspective SFGH Hepatology Perspective UCSF General Medicine Perspective

7 Why Was the Team Formed? Passion for Asian American health and health disparities Commitment to community-based and patient-centered work Common focus on hepatitis B and liver cancer Complementary expertise Hep B Free: community mobilization, stakeholder engagement SFGH/Hepatology: clinical research, underserved, specialty UCSF/General Medicine: community-based participatory research, multi-lingual interventions, prevention

8 How Was the Team Formed? SFGH/Hepatology and Hep B Free SFGH/Hepatology and UCSF/General Medicine San Francisco AANCART NCI Program Grant on Hepatitis B screening Hep B Free and UCSF/General Medicine UCSF: Vietnamese portion of Hep B Free Campaign Hep B Free requested consultation through CTSI Community Engagement & Health Policy (CE&HP) Program All 3: CE&HP Working Group---SF Hep B Quality Improvement Collaborative Grant opportunities

9 Benefits to the Project Funding: Innovation, Collaboration, Capabilities, Stakeholder Engagement Intervention Development: Scientific, Logistics, Culture/Language, Patient-Centered Implementation: Instrument Development, Informed/Consent/Recruitment, Clinic/System Logistics Dissemination

10 Benefits: Application Algorithm

11 Benefits: Mobile App and Provider Alert

12 Benefits: Empowerment

13 Benefits: Control Group

14 Benefits: Usability

15 Challenges of Collaboration Different perspectives and approaches Aligning expectations Communication Personnel and other changes

16 Addressing Challenges Budget Logistics: regular team meeting with rotating sites, coordinators meetings, PI phone calls Respectful communication time for discussion so everyone’s viewpoints are heard problem solving not finger pointing consensus decision making Stakeholder engagement: regular meetings on site with food, being open-minded, sense of humor

17 Recommendations Establish relationships early before thinking about writing a grant together Be flexible and modify your approach as needed Establish open communication Understand that resolving challenges caused by intersection of different perspectives lead to innovation and generalizability

18 Discussion How to find stakeholders or collaborators? How to be flexible? How to deal with conflict?

19 Tung.Nguyen@ucsf.edu Mandana.Khalili@ucsf.edu arcadi.kolchak@sfhepbfree.org www.asianarch.org

20

Download ppt "Collaborative Patient-Centered Research to Reduce Health Disparities: The Health Within Reach Project Tung Nguyen, MD, Division of General Internal Medicine,"

Similar presentations

Diversity Issues in Research Charlotte Brown, Ph.D. Associate Professor of Psychiatry Western Psychiatric Institute and Clinic PMBC Summer Institute, Pittsburgh,

Diversity Issues in Research Charlotte Brown, Ph.D. Associate Professor of Psychiatry Western Psychiatric Institute and Clinic PMBC Summer Institute, Pittsburgh,
Healthy People 2020: Preparing for a New Decade Dr. Jeanette Guyton-Krishnan NCHS Data Users Conference August 18, 2010.

Healthy People 2020: Preparing for a New Decade Dr. Jeanette Guyton-Krishnan NCHS Data Users Conference August 18, 2010.
National Perspective of Healthy People 2020 Penelope Slade-Sawyer, P.T., M.S.W. HHS Office of Disease Prevention and Health Promotion 18 th Annual Healthy.

National Perspective of Healthy People 2020 Penelope Slade-Sawyer, P.T., M.S.W. HHS Office of Disease Prevention and Health Promotion 18 th Annual Healthy.
Engaging Patients and Other Stakeholders in Clinical Research

Engaging Patients and Other Stakeholders in Clinical Research
The CGEN Project: Development, Implementation and Testing of Genetics Education Materials for Use in Community and Clinical Settings National Coalition.

The CGEN Project: Development, Implementation and Testing of Genetics Education Materials for Use in Community and Clinical Settings National Coalition.
Title Patient Patient Advisory CouncilAdvisory Council Patient Advisory Council.

Title Patient Patient Advisory CouncilAdvisory Council Patient Advisory Council.
RTRN is supported by grant number U54MD008149 from the National Institute on Minority Health and Health Disparities, National Institutes of HealthNational.

RTRN is supported by grant number U54MD from the National Institute on Minority Health and Health Disparities, National Institutes of HealthNational.
The Community Engagement Studio: Strengthening Research Capacity through Community Engagement Consuelo H. Wilkins, MD, MSCI Executive Director, Meharry.

The Community Engagement Studio: Strengthening Research Capacity through Community Engagement Consuelo H. Wilkins, MD, MSCI Executive Director, Meharry.
Practicing Community-engaged Research Mary Anne McDonald, MA, Dr PH Duke Center for Community Research Duke Translational Medicine Institute Division of.

Practicing Community-engaged Research Mary Anne McDonald, MA, Dr PH Duke Center for Community Research Duke Translational Medicine Institute Division of.
So You Want to Do Comparative Effectiveness Research? The Nuts and Bolts of CER.

So You Want to Do Comparative Effectiveness Research? The Nuts and Bolts of CER.
Promotores de Salud as New approach to the African American in the County of San Bernardino A partnership between two Community Based Organizations in.

Promotores de Salud as New approach to the African American in the County of San Bernardino A partnership between two Community Based Organizations in.
PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE PCORI Board of Governors Meeting Washington, DC September 24, 2012 Sue Sheridan, Acting Director, Patient.

PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE PCORI Board of Governors Meeting Washington, DC September 24, 2012 Sue Sheridan, Acting Director, Patient.
©PPRNet 2014 Impact of Patient Engagement on Treatment Decisions and Patient-Centered Outcomes in the Implementation of New Guidelines for the Treatment.

©PPRNet 2014 Impact of Patient Engagement on Treatment Decisions and Patient-Centered Outcomes in the Implementation of New Guidelines for the Treatment.
This project has been funded in whole or in part with Federal funds from the Department of Health and Human Services, National Institutes of Health, National.

This project has been funded in whole or in part with Federal funds from the Department of Health and Human Services, National Institutes of Health, National.
PROSPEC: Using an information technology-supported patient-centered intervention to reduce disparities in prostate cancer screening discussions John H.

PROSPEC: Using an information technology-supported patient-centered intervention to reduce disparities in prostate cancer screening discussions John H.
COMMUNITY ENGAGEMENT HUB Lake Babine Nation Crystal Harwood.

COMMUNITY ENGAGEMENT HUB Lake Babine Nation Crystal Harwood.
Keith J. Mueller, Ph.D. Director, RUPRI Center for Rural Health Policy Analysis Head, Department of Health Management and Policy College of Public Health.

Keith J. Mueller, Ph.D. Director, RUPRI Center for Rural Health Policy Analysis Head, Department of Health Management and Policy College of Public Health.
Patient Navigation, Community Based Participatory Research and Asian Health Disparities Karen Freund MD MPH Professor and Vice Chair of Medicine Tufts.

Patient Navigation, Community Based Participatory Research and Asian Health Disparities Karen Freund MD MPH Professor and Vice Chair of Medicine Tufts.
Factors associated with hepatitis B serologic screening in a population- based survey of Korean Americans from Washington state Adeena Khan, MD 1 Genji.

Factors associated with hepatitis B serologic screening in a population- based survey of Korean Americans from Washington state Adeena Khan, MD 1 Genji.
Issues in Research on Minority Populations Charlotte Brown, Ph.D. Associate Professor of Psychiatry Western Psychiatric Institute and Clinic PMBC Summer.

Issues in Research on Minority Populations Charlotte Brown, Ph.D. Associate Professor of Psychiatry Western Psychiatric Institute and Clinic PMBC Summer.

Similar presentations

Ads by Google