1. Survey of Residential Needs and Options Prosper Fingal Family Forum – February 2016

2. Context  From Care Institutions to Community living…..  Not for Everyone - Residential Care organised (with difficulty) in Family Crisis situations or for People with very severe disabilities (amongst a range of Providers)  People with disabilities are living longer………..  Recession - Funding Crisis – diminishing resources from other sources. Reductions in Religious Communities previously providing Care……WAITING LISTS lengthen  Family Forum engaged with this issue for past year  External Context – Major National Housing Crisis – Uphill Battle  Addressing problems in ‘Congregated Settings’ divert issue. No New Places!  Now 38 Families experiencing crises in Residential Care  Our Survey indicates a further 20 families will need Residential support over next five years  The Parent Forum decides to concentrate efforts and resources on a Strategy and Action to raise awareness and lobby for funding.

3. What we set out to do?  Residential Care Views and Options Discussion in Forum and smaller Consultation Group  Agreed to undertake Survey taking account of views expressed (Outline presented)  We asked People to reflect on the current situation (informs about Crisis family circumstances and needs over next five years) and imagine/anticipate the near future (over next ten years or sometime in the future). We looked for the following information:  Profile of Family Members and Parents  Current Living Arrangements –  Support in the Home  Sustainability of these arrangements  Future Arrangements – (Continue/Not in Family Home or other arrangements)  Future Residential Care Needed in What Environment?  Level of Residential Support Needed  When Support is needed  Are Family members involved in Care  Survey results to Inform Election, Lobbying and Budget Strategies now and in the future

4. Survey Response - 164 of a possible total of 270 or 60% Service Location Portmarnock Seatown Road Rush Skerries Piercetown Howth Balbriggan Main St (Swords) North Street (Swords) 51 26 33 11 8 7 2 19 86% 54% 69% 65% 42% 78% New service 31%

5. Key factors outlining Residential Needs based on ‘Crisis’ Situations and Survey results  Key Characteristics of Families in need of most immediate residential care  Parents and Carers – An aging population. Two Carer and One Carer families  Family Members with Disabilities - an aging population with varying levels of disability and inherent challenges  Extent of Family Home residence and Parental Support systems  Sustainability of current situation  New Environments needed

6. What we know about Families in need of Immediate Care Prosper Fingal has currently identified 38 service users as being in need of a residential place immediately. (19 of these families responded to the Survey) Residential SituationsNo of Clients No Parents, Living with a Sibling or a Relative 6 Living with a Single Parent, some of whom are elderly or have a Medical condition 14 Living with both Parents, some of whom are elderly or have a Medical condition 17 Living with Foster Parents 1 Total38 Age Range of Clients in Residential Care 20-29 years 7 30-39 years18 40-49 Years 7 50-59 years 4 60-69 years 1 Total37 Source - Prosper Fingal June 2015

7. Family Carers by Age Group (No)

8. Family Members by Age Group and level of Disability (No)

9. Age, Severity of Disability and Carer Status 5

10. Where the Family member is currently Living

11. Who is supporting the Family Member?

12. Sustainability of current Living Arrangements 2

13. When change is needed? 5 1

14. Future Arrangements – Home

15. Preferred Future Residential Care Environment

16. Level of Residential Support Needed

17. Summary  Survey contains revealing information not previously known but which now needs to be highlighted – EVERYONE NEEDS TO KNOW.  Crisis Families  Ageing Populations (Carers and family members with disabilities)  Changing and increasing nature and severity of disability with ageing  Major challenges to change Status Quo – (Parental support and Home-based care) to Preferred Options for the future  Cuts in funding –major hurdle/challenge in the future. Need to increase Resources  Parents seeking best possible residential care and support in the future  We want PROSPER FINGAL to be central to the development of future residential care options  ELECTION TIME NOW – SIGNIFICANT OPPORTUNITY TO BUILD AWARENESS AND LOOK FOR CHANGE AND RESOURCES