1. Ensuring Deaf people with dementia are supported Professor Alys Young & Emma Ferguson-Coleman University of Manchester

2. What you will know in 15 minutes’ time… Definitions of being Deaf What it means to live with dementia as a Deaf BSL user How you can support Deaf people living with dementia

3. Being Deaf Linguistic and cultural minority BSL is a recognised language in UK Prevalence of older Deaf population (Young, 2013)

4. Living with dementia as a Deaf BSL user Diagnosis pathway – what are the barriers? Support after diagnosis – where would a Deaf BSL user go? Maintaining everyday life – how is this achieved?

5. Communicating helps language, expression and well being Marginalisation is a risk, being forgotten, not attended to, not valued My family and friends will offer support as they know me If my carer cannot sign, how can my language, culture and well-being be supported? We are likely to have been marginalised all our lives, not seen, not valued, not attended to – what will change? My family might not use the same language as me My friends may not understand what dementia is My carers may not know me Living with dementia as a Deaf BSL user Living with dementia as a hearing person

6. Potential solutions for support Clear and visual communication Reducing marginalisation and maintaining the person’s independence When do I work with an interpreter? Culturally appropriate activities

7. Questions?

8. Contact Professor Alys Young 0161 306 7747 alys.young@manchester.ac.uk Emma Ferguson-Coleman emma.ferguson-coleman@manchester.ac.uk

9. Publications Young, A., Ferguson-Coleman, E. & Keady, J (2014). Understanding the Personhood of Deaf People with Dementia: Methodological Issues http://www.sciencedirect.com/science/article/pii/S0890406514000486 Ferguson-Coleman, E., Keady, J. & Young, A (2014). Dementia and the Deaf community: knowledge and service access. Aging Ment Health, 18(6), 674-682 http://www.tandfonline.com/doi/pdf/10.1080/13607863.2014.880405 http://www.tandfonline.com/doi/pdf/10.1080/13607863.2014.880405 Young, A., Ferguson-Coleman, E. & Keady, J (2014). Understanding dementia: effective information access from the Deaf community's perspective. http://onlinelibrary.wiley.com/doi/10.1111/hsc.12181/abstract Young, A., Waterman, H. & Ferguson-Coleman, E (2014). Dementia Gateway: Sensory Loss and Dementia. http://www.scie.org.uk/publications/dementia/living-with-dementia/sensory-loss/files/sensory- loss-research.pdf Young, A (2014). Older Deaf People and Social Care. 1-31 http://royaldeaf.org.uk/files/files/RAD%20GENERAL/Documents/older_deaf_people_and_social_ care.pdf www.manchester.ac.uk/deafwithdementia