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Hepatitis C Patient Advocates: Sharing Innovative Work in Their Communities February 18, 2016.

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Presentation on theme: "Hepatitis C Patient Advocates: Sharing Innovative Work in Their Communities February 18, 2016."— Presentation transcript:

1 Hepatitis C Patient Advocates: Sharing Innovative Work in Their Communities February 18, 2016

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7 Contact – Volunteer, Donate, Get Help, Get Educated Indiana Recovery Alliance PO Box 394 Bloomington, IN 47402 812-964-9497 indianarecoveryalliance.org facebook.com/indianarecoveryalliance

8 President: Kimberly Morgan Bossley

9 Bonnie L Morgan (1947-2006) Good Housekeeping Magazine 1969

10 Trial on Solvaldi/Ribaviran Last day on Trail

11 Second Opinion Show Featuring topic Living with HEP C Guest Dr. Raymond Chung

12 Filming of the documentary

13 Keeping up with the latest news on Hep C Advocating on Capital Hill 2014

14 Our VOICES need to be heard

15 Community liver walks with AMLF

16 Putting a FACE to a highly stigmatized disease

17 Congratulations to a GREAT YEAR 2015

18 Ways of Advocating

19 The Bonnie Morgan Foundation for HCV’s way of putting Hep C in every day lives

20 Connecting with the every day person and life style

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22 YOU CAN TOO !

23 “Not without a FIGHT!~HCV~©” Together WE are STRONG !!

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25 580 W 5 TH ST, RENO, NV 89503 | 775.786.4673 | NNHOPES.ORG Personal Story Diagnosed in 2004 Long-term opiate dependent PWID Exposed to harm reduction early on, still ignorant to how HCV was transmitted. Certified as an HCV Community Educator in 2013 and have been working as a tester, educator, advocate, and counselor since that year. NNOT/PHASA/ local coalitions: decriminalized syringe access and naloxone distro! CHANGE POINT: ‘one hit, one kit, and don’t share shit!’ Latest developments: MPAC !

26 580 W 5 TH ST, RENO, NV 89503 | 775.786.4673 | NNHOPES.ORG Northern Nevada HOPES Community Health Worker: PWID and HCV communities. HOPES started as an HIV only clinic and nonprofit charity – now FQHC and wellness center. Expanded services, still focused on marginalized communities. Northern Nevada’s only recurring HCV Peer support group. Modeled on Dr. Sylvestre’s ‘OASIS group’ The miracle of clinical integration!

27 580 W 5 TH ST, RENO, NV 89503 | 775.786.4673 | NNHOPES.ORG A New Community Wellness Center

28 580 W 5 TH ST, RENO, NV 89503 | 775.786.4673 | NNHOPES.ORG Issues Faced in Reno, Nevada Resource desert. ‘High’/High Desert - Meth is rampant – Heroin is on the rise! Outlying rural areas, residential Hotel lifestyle. Raising awareness (managed care v FFS) Unique agency…

29 580 W 5 TH ST, RENO, NV 89503 | 775.786.4673 | NNHOPES.ORG Lessons Learned With persistence: Potential for REAL change! A little about the democratic process here in Nevada…. Okay A LOT (on accident.) STIGMA = DEATH, keep your head up and keep making noise!

30 580 W 5 TH ST, RENO, NV 89503 | 775.786.4673 | NNHOPES.ORG Resources HCV ADVOCATE: www.hcvadvocate.orgwww.hcvadvocate.org HARM REDUCTION COALITION: www.harmreduction.orgwww.harmreduction.org O.A.S.I.S. Program: www.oasiscliniconline.orgwww.oasiscliniconline.org Public Health Alliance for Safety Access (formerly Syringe Access): www.nvphasa.orgwww.nvphasa.org Northern Nevada Outreach Team/NNOT: https://www.facebook.com/northernnevadaoutreachtea m​ https://www.facebook.com/northernnevadaoutreachtea m

31 580 W 5 TH ST, RENO, NV 89503 | 775.786.4673 | NNHOPES.ORG Thank you.

32 Q&A and Discussion Please submit your questions for the panelists using the chat function in the webinar, or by emailing tbroder@nvhr.orgtbroder@nvhr.org A copy of this recording and the slides will be sent to everyone who registered and posted on www.nvhr.orgwww.nvhr.org Thank you for your participation!


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