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A Global Framework for Action - Translating Theory into Practice Anne Stangl, PhD, MPH Senior Behavioral Scientist, ICRW July 26, 2012
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Background ICRW stakeholder consultation, November 2008 Lack of consistency in how stigma is measured globally –Question wording –Response categories –Domains assessed Lack of M&E Guidance related to S&D Limits ability to: –Evaluate stigma-reduction programming –Improve programs –Compare data across contexts –Use evidence to advocate for scale-up
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Background (2) Initial Technical Consultation, Nov 2009 Development of Framework by 16 member GSDIWG
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Adapted from: Stangl, A. V.Go, C. Zelaya, L. Brady, L. Nyblade, L. Stackpool-Moore, J. Hows, L. Sprague, L. Nykanen, B. DeZalduondo. Poster presented at IAS 2010; Vienna. PLHIV & key Populations Institutions & Structures Impacts Stigma Outcomes Stigma Manifestations Stigma “Marking” Intersecting Stigmas HIV Stigma Other Stigmas Actionable Drivers & Facilitators Family & Peers General Population Key areas for intervention development, scale-up & measurement
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PLHIV & key Populations Institutions & Structures Family & Peers General Population Lack of Awareness Fear of HIV Infection Fear of Social Ramifications Fear of Economic Ramifications Social Judgment Prejudice & stereotypes regarding: HIV status Drug use Sexual behavior Sex work Gender Age Actionable Drivers & Facilitators Laws, Policies & Policy Environments Cultural Gender culture Sexual culture Health beliefs Ethics & morality Individual & Community Power Social support Social assertiveness Resilience
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PLHIV & key Populations Institutions & Structures Intersecting Stigmas HIV Status Gender Sexuality Profession Drug Use Caste Actionable Drivers & Facilitators Family & Peers General Population Stigma “Marking”
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PLHIV & key Populations Institutions & Structures Actionable Drivers & Facilitators Family & Peers General Population Stigma “Marking” Intersecting Stigmas HIV Stigma Other Stigmas Resilience Anticipated Stigma Perceived Stigma Internalized Stigma Experienced Stigma (outside legal purview) Discrimination (inside legal purview) Stigma Manifestations
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PLHIV & key Populations Institutions & Structures Actionable Drivers & Facilitators Family & Peers General Population Stigma “Marking” Intersecting Stigmas HIV Stigma Other Stigmas Stigma Manifestations Stigma Outcomes Behaviors Uptake of HIV Services Uptake of Support Services
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PLHIV & key Populations Institutions & Structures Actionable Drivers & Facilitators Family & Peers General Population Stigma “Marking” Intersecting Stigmas HIV Stigma Other Stigmas Stigma Manifestations Stigma Outcomes Stigma Impacts Quality of Life HIV Incidence & Prevalence Morbidity & Mortality
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General Population Measures: How Far have We Come?
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Measures Piloted in Rwanda: 5 Domains Cognitive Interviews of 18 questions in Rwanda (n=24) Selection and piloting of 8 questions in Rwanda DHS Pilot N=4669 9 questions found to be valid and reliable
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General Population Measures
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General Population Measures (2)
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Next Steps Validate the measures in more countries Assess whether the measures predict key HIV-related behaviors and outcomes (i.e. HIV testing, condom use, etc.)
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Thank You!
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