1. HTM 520 Jennifer Cavallaro RN, BSN

2.  Database of Patient Information  Track specific Diseases  Determine clinical effectiveness  Monitors Safety/Harm  Measures Quality of Care What is a Registry and how does it fit with HIE?

3.  Vaccine management & accountability  Monitor outbreaks & respond  Generate client reminders  Reduce vaccine preventable disease  Lower healthcare costs

4.  Stage I – Capability to Submit to Registry  Stage II – Ongoing submission of Data HL7 SNOMED LOINC SOAP WHO CDC VXU

5.  Need for Common Language  Lack of National Stands  Poor quality of data submitted  Preventing missed opportunities  Improving emergency response capabilities  Improving patient outcomes

6.  Registries collect and manage patient information about specific diseases  Part of Meaningful Use stages I & II  Standard oriented  Technical & human challenges  Important role in the future of healthcare  Improve outcomes & lower costs

7.  Centers for disease control and prevention. (2012). http://www.cdc.gov/vaccines/programs/iis/about.html#exchange  Computerized disease registries. (2013). Retrieved from http://healthit.ahrq.gov/knowledge- library/key- topics/computerized-disease-registrieshttp://healthit.ahrq.gov/knowledge-  Gliklich, R., & Dreyer, N. (Eds.). (2010). Data collection and quality assurance. Registries for evaluating patient outcomes: A user’s guide (2nd ed.). Rockville (MD): Agency for Healthcare Research and Quality (US).  HL7 Version 2.5.1, Implementation guide for immunization messaging. (2012). Retrieved 9/7/2013, from http://www.cdc.gov/vaccines/programs/iis/technical- guidance/downloads/hl7guide-1-4-2012-08.pdf http://www.cdc.gov/vaccines/programs/iis/technical-  International standards for clinical trial registries. (2012). Retrieved Sept. 9, 2013, from http://apps.who.int/iris/bitstream/10665/76705/1/9789241504294_eng.pdf  Larsson, S., Lawyer, P., Garellick, G., Lindahl, B., & Lundström, M. (2012). Use of 13 disease registries in 5 countries demonstrates the potential to use outcome data to improve healthcare's value. Health Affairs, 31(1), 220-7. Retrieved from http://ezproxy.nu.edu/login?url=http://search.proquest.com/docview/916577711?accountid=25320  Medicare & Medicaid EHR incentive program, Meaningful use stage 1 requirements overview. (2010). Retrieved from http://www.cms.gov/Regulations-and- Guidance/Legislation/EHRIncentivePrograms/downloads/MU_Stage1_ReqOverview.pdfhttp://www.cms.gov/Regulations-and-  Request for Comment (RFC). (2013). Retrieved from http://www.healthit.gov/sites/default/files/hitpc_stage3_rfc_final.pdf  Summary: ASTHO immunization registries summit. (2010). Retrieved from http://www.astho.org/Programs/Immunization/Immunization-Registries-Summit-Summary/  The medicare and medicaid electronic health record (EHR) incentive programs: Stage 2 toolkit. (2013). Retrieved from http://www.cms.gov/Regulations-and- Guidance/Legislation/EHRIncentivePrograms/Downloads/Stage2_Toolkit_EHR_0313.pdfhttp://www.cms.gov/Regulations-and-