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What are patients telling us? Vicky Crichton, Cancer Research UK Representative of the Scottish Cancer Coalition.

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Presentation on theme: "What are patients telling us? Vicky Crichton, Cancer Research UK Representative of the Scottish Cancer Coalition."— Presentation transcript:

1 What are patients telling us? Vicky Crichton, Cancer Research UK Representative of the Scottish Cancer Coalition

2 How do we know?  'The BIG Cancer Conversation'  ‘Have Your Say’ event  Scotland Against Cancer  Scottish Cancer Coalition  Better Together

3 What do we mean by quality?  What is a patient-centred approach?  Why is it important?  How do we measure it?

4 Patient-centred care  Individual  Customer satisfaction  Full impact of cancer  Personalised care plan

5 Patient as partner  An equal partner  Choose level of involvement  Informed choice  Support

6 Joined-up, co-ordinated care  Integrated service providers  Navigation  Co-ordinators  Transitions  Referral and signposting

7 Information and support  Appropriate  Delivery – who, what, when, where, how  Communication skills  Referral and signposting  Family, friends, carers, community

8 What are we not assessing?  Time to referral  Late effects  Non-clinical aspects  Real life impact

9 Patient involvement  Room for improvement  Design and delivery  Better Together  Acting on input  Small changes, big improvements  User testing

10 Quality information  Altruism  Catharsis  Reassurance  Pride

11 Scottish Cancer Coalition

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